Table 3 Characteristics of the patients and caregivers participating in the construct validation of the version 3 (n = 32)
Patients | Caregivers | ||
|---|---|---|---|
Age in years, median (IQR) | 13 (10–18) | 37 (33–46) | |
Female (%) | 25 (78) | 30 (93) | |
Public medical access (%) | 25 (78) | NA | |
Time to the center in hours, median (IQR) | 1 (0.5–1.5) | NA | |
JIA categorya (%) | Oligoarticular | 2 (6) | NA |
Polyarticularb | 24 (75) | ||
Systemic | 3 (9.5) | ||
Psoriatic | 0 (0) | ||
Enthesitis related | 3 (9.5) | ||
Undifferentiated | 0 (0) | ||
History of uveitis (%) | 0 (0) | NA | |
History of MAS (%) | 1 (3) | NA | |
History of hospitalization (%) | 4 (12.5) | NA | |
Presence of any disability (%) | 4 (12.5) | NA | |
Active disease at enrollment (%) | 9 (28) | NA | |
Treatment (%) | NSAIDs | 21 (65) | NA |
Synthetic DMARDs | 21 (65) | ||
Steroids | 2 (6) | ||
Biologic DMARDs | 10 (31) | ||
Depressive symptoms (%)c | NA | 29 (90%) | |
VAS on EQ-5D-3 L, median (IQR) | NA | 82 (75–91) | |
Had a remunerated job (%) | NA | 19 (59) | |
Medium socioeconomic status or above (%) | NA | 22 (69) | |
Education level: Highschool or above (%) | NA | 18 (56) | |