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Table 3 Characteristics of the patients and caregivers participating in the construct validation of the version 3 (n = 32)

From: Development and validation of the CAREGIVERS questionnaire: multi-assessing the impact of juvenile idiopathic arthritis on caregivers

 PatientsCaregivers
Age in years, median (IQR)13 (10–18)37 (33–46)
Female (%)25 (78)30 (93)
Public medical access (%)25 (78)NA
Time to the center in hours, median (IQR)1 (0.5–1.5)NA
JIA categorya (%)Oligoarticular2 (6)NA
Polyarticularb24 (75)
Systemic3 (9.5)
Psoriatic0 (0)
Enthesitis related3 (9.5)
Undifferentiated0 (0)
History of uveitis (%)0 (0)NA
History of MAS (%)1 (3)NA
History of hospitalization (%)4 (12.5)NA
Presence of any disability (%)4 (12.5)NA
Active disease at enrollment (%)9 (28)NA
Treatment (%)NSAIDs21 (65)NA
Synthetic DMARDs21 (65)
Steroids2 (6)
Biologic DMARDs10 (31)
Depressive symptoms (%)cNA29 (90%)
VAS on EQ-5D-3 L, median (IQR)NA82 (75–91)
Had a remunerated job (%)NA19 (59)
Medium socioeconomic status or above (%)NA22 (69)
Education level: Highschool or above (%)NA18 (56)
  1. IQR Interquartile range, MAS Macrophage Activation Syndrome, NSAIDs Nonsteroidal anti-inflammatory drugs, DMARDs Disease-modifying antirheumatic drugs, VAS Visual analogue scale, EQ-5D-3 L Spanish Version of EuroQol instrument, NA Not applicable
  2. aAccording to International League of Associations for Rheumatology classification criteria
  3. bBoth rheumatoid factor positive and negative JIA
  4. cAccording to Spanish Version Beck’s Depression Inventory (21 items)