Oen KG, Cheang M. Epidemiology of chronic arthritis in childhood. Semin Arthritis Rheum. 1996;26(3):575–91.
Article
CAS
Google Scholar
Wallace CA, Giannini EH, Spalding SJ, Hashkes PJ, O’Neil KM, Zeft AS, et al. Clinically inactive disease in a cohort of children with new-onset polyarticular juvenile idiopathic arthritis treated with early aggressive therapy: time to achievement, total duration, and predictors. J Rheumatol. 2014;41(6):1163–70.
Article
Google Scholar
Ringold S, Seidel KD, Koepsell TD, Wallace CA. Inactive disease in polyarticular juvenile idiopathic arthritis: current patterns and associations. Rheumatology. 2009;48(8):972–7.
Article
Google Scholar
Guzman J, Oen K, Huber AM, Watanabe Duffy K, Boire G, Shiff N, et al. The risk and nature of flares in juvenile idiopathic arthritis: results from the ReACCh-out cohort. Ann Rheum Dis. 2016;75:1092–8.
Article
Google Scholar
Modi AC, Pai AL, Hommel KA, Hood KK, Cortina S, Hilliard ME, et al. Pediatric self-management: a framework for research, practice, and policy. Pediatrics. 2012;129(2):e473–85.
Article
Google Scholar
Rapoff MA, Lindsley CB. Improving adherence to medical regimens for juvenile rheumatoid arthritis. Pediatr Rheumatol Online J. 2007;5:10.
Article
Google Scholar
Toupin April K, Feldman DE, Zunzunegui MV, Duffy CM. Association between perceived treatment adherence and health-related quality of life in children with juvenile idiopathic arthritis: perspectives of both parents and children. Patient Prefer Adherence. 2008;2:121–8.
Google Scholar
Feldman DE, De Civita M, Dobkin PL, Malleson PN, Meshefedjian G, Duffy CM. Effects of adherence to treatment on short-term outcomes in children with juvenile idiopathic arthritis. Arthritis Rheum. 2007;57(6):905–12.
Article
Google Scholar
Ringold S, Grant S, Girdish C, Wallace CA, Sullivan SD. Methotrexate and injectable tumor necrosis factor-alpha inhibitor adherence and persistence in children with rheumatic diseases. J Rheumatol. 2013;40(1):80–6.
Article
CAS
Google Scholar
Favier LA, Taylor J, Rich KL, Jones KB, Vora SS, Harris JG, Gottlieb BS, Robbins L, Lai JT, Lee T, Kohlheim M, Ferraro K, Gil J, Bouslaugh L, Young A, Griffin N, Modi AC. Barriers to adherence in juvenile idiopathic arthritis: a multicenter collaborative experience and preliminary results. J Rheumatol. 2018;45(5):690–6.
Article
Google Scholar
Wu YP, Pai ALH. Health care provider-delivered adherence promotion interventions: a meta-analysis. Pediatrics. 2014;133(6):e1698–707.
Article
Google Scholar
Colebatch-Bourn AN, Edwards CJ, Collado P, D’Agostino MA, Hemke R, Jousse-Joulin S, et al. EULAR-PReS points to consider for the use of imaging in the diagnosis and management of juvenile idiopathic arthritis in clinical practice. Ann Rheum Dis. 2015;74(11):1946–57.
Article
CAS
Google Scholar
Collado P, Jousse-Joulin S, Alcalde M, Naredo E, D’Agostino MA. Is ultrasound a validated imaging tool for the diagnosis and management of synovitis in juvenile idiopathic arthritis? A systematic literature review. Arthritis Care Res (Hoboken). 2012;64(7):1011–9.
PubMed
Google Scholar
Magni-Manzoni S, Scirè CA, Ravelli A, Klersy C, Rossi S, Muratore V, et al. Ultrasound-detected synovial abnormalities are frequent in clinically inactive juvenile idiopathic arthritis, but do not predict a flare of synovitis. Ann Rheum Dis. 2013;72(2):223–8.
Article
Google Scholar
Magni-Manzoni S, Epis O, Ravelli A, Klersy C, Visconti C, Lanni S, et al. Comparison of clinical versus ultrasound-determined synovitis in juvenile idiopathic arthritis. Arthritis Care Res (Hoboken). 2009;61(11):1497–504.
Article
Google Scholar
Rebollo-Polo M, Koujok K, Weisser C, Jurencak R, Bruns A, Roth J. Ultrasound findings on patients with juvenile idiopathic arthritis in clinical remission. Arthritis Care Res (Hoboken). 2011;63(7):1013–9.
Article
Google Scholar
Joplin S, van der Zwan R, Joshua F, Wong PKK. Medication adherence in patients with rheumatoid arthritis: the effect of patient education, health literacy, and musculoskeletal ultrasound. Biomed Res Int. 2015;2015:1–10.
Article
Google Scholar
Joplin SK, van der Zwan R, Bagga H, Joshua F, Wong PKK. Pilot study assessing the novel use of musculoskeletal ultrasound in patients with rheumatoid arthritis to improve patient attitudes and adherence to medication. Int J Rheum Dis. 2014. https://doi.org/10.1111/1756-185X.12402.
Article
Google Scholar
Kumar K, Raza K, Gill P, Greenfield S. The impact of using musculoskeletal ultrasound imaging and other influencing factors on medication adherence in patients with rheumatoid arthritis: a qualitative study. Patient Prefer Adherence. 2016;10:1091–100.
Article
Google Scholar
Modi AC, Guilfoyle SM, Rausch J. Preliminary feasibility, acceptability, and efficacy of an innovative adherence intervention for children with newly diagnosed epilepsy. J Pediatr Psychol. 2013;38(6):605–16.
Article
Google Scholar
Ingerski LM, Hente EA, Modi AC, Hommel KA. Electronic measurement of medication adherence in pediatric chronic illness: a review of measures. J Pediatr. 2011;159(4):528–34.
Article
Google Scholar
McGrady ME, Holbein CE, Smith AW, Morrison CF, Hommel KA, Modi AC, Pai AL, Ramsey RR. An independent evaluation of the accuracy and usability of electronic adherence monitoring devices. Ann Intern Med. 2018.
Rapoff MA. Adherence to pediatric medical regimens. Second Edition J Dev Behav Pediatr. 2010;31:476.
Article
Google Scholar
De Civita M, Dobkin PL, Ehrmann-Feldman D, Karp I, Duffy CM. Development and preliminary reproducibility and validity of the parent adherence report questionnaire: a measure of adherence in juvenile idiopathic arthritis. J Clin Psychol Med Settings. 2005;12(1):1–12.
Article
Google Scholar
Toupin April K, Higgins J, Ehrmann FD. Application of Rasch analysis to the parent adherence report questionnaire in juvenile idiopathic arthritis. Pediatr Rheumatol. 2016;14(1):45.
Article
Google Scholar
Simons LE, McCormick ML, Devine K, Blount RL. Medication barriers predict adolescent transplant recipients’ adherence and clinical outcomes at 18-month follow-up. J Pediatr Psychol. 2010;35(9):1038–48.
Article
Google Scholar
Modi AC, Monahan S, Daniels D, Glauser TA. Development and validation of the pediatric epilepsy medication self-management questionnaire. Epilepsy Behav. 2010;18(1–2):94–9.
Article
Google Scholar
Modi AC, Crosby LE, Guilfoyle SM, Lemanek KL, Witherspoon D, Mitchell MJ. Barriers to treatment adherence for pediatric patients with sickle cell disease and their families. Child Heal Care. 2009;38(2):107–22.
Article
Google Scholar
Consolaro A, Ruperto N, Bazso A, Pistorio A, Magni-Manzoni S, Filocamo G, et al. Development and validation of a composite disease activity score for juvenile idiopathic arthritis. Arthritis Rheum. 2009;61(5):658–66.
Article
Google Scholar
Varni JW, Seid M, Knight TS, Burwinkle T, Brown J, Szer IS. The PedsQL in pediatric rheumatology: reliability, validity, and responsiveness of the pediatric quality of life inventory generic Core scales and rheumatology module. Arthritis Rheum. 2002;46(3):714–25.
Article
Google Scholar
Ting TV, Vega-Fernandez P, Oberle EJ, De Ranieri D, Bukulmez H, Lin C, et al. A Novel Ultrasound Image Acquisition Protocol and Scoring System for the Pediatric Knee. Arthritis Care Res. 2018; Epub ahead of print.
Collado P, Vojinovic J, Nieto JC, Windschall D, Magni-Manzoni S, Bruyn GA, et al. And Omeract ultrasound pediatric group. Toward standardized musculoskeletal ultrasound in pediatric rheumatology: Normal age-related ultrasound findings. Arthritis Care Res. 2016;68(3):348–56.
Article
Google Scholar
Roth J, Ravagnani V, Backhaus M, Balint P, Bruns A, Bruyn GA, et al. Preliminary definitions for the sonographic features of synovitis in children. Arthritis Care Res. 2017;69(8):1217–23.
Article
Google Scholar
Maddux M, Ricks S, Delurgio S, Hommel K. A pilot study evaluating the impact of an adherence-promoting intervention among nonadherent youth with inflammatory bowel disease. J Pediatr Nurs. 2017;35:72–7.
Article
Google Scholar
Drotar D. Promoting adherence to medical treatment in chronic childhood illness: concepts, methods, and interventions: Psychology Press; 2000.
Modi AC, Rausch JR, Glauser TA. Patterns of nonadherence to antiepileptic drug therapy in children with newly diagnosed epilepsy. JAMA. 2011;305(16):1669.
Article
CAS
Google Scholar
Mulligan K, Wedderburn LR, Newman S. The experience of taking methotrexate for juvenile idiopathic arthritis: results of a cross-sectional survey with children and young people. Pediatr Rheumatol. 2015;13:58.
Article
Google Scholar
Feldman DE, De Civita M, Dobkin PL, Malleson P, Meshefedjian G, Duffy CM. Perceived adherence to prescribed treatment in juvenile idiopathic arthritis over a one-year period. Arthritis Care Res (Hoboken). 2007;57(2):226–33.
Article
Google Scholar
Janz NK, Becker MH. The health belief model: a decade later. Health Educ Q. 1984;11(1):1–47.
Article
CAS
Google Scholar
Rapoff MA, Belmont JM, Lindsley CB, Olson NY, Morris J, Padur J. Prevention of nonadherence to nonsteroidal anti-inflammatory medications for newly diagnosed patients with juvenile rheumatoid arthritis. Health Psychol. 2002;21(6):620.
Article
Google Scholar
Rapoff MA, Belmont JM, Lindsley CB, Olson NY. Electronically monitored adherence to medications by newly diagnosed patients with juvenile rheumatoid arthritis. Arthritis Care Res (Hoboken). 2005;53(6):905–10.
Article
Google Scholar
Stinson J, McGrath P, Hodnett E, Feldman B, Duffy C, Huber A, et al. Usability testing of an online self-management program for Adolescents with Juvenile Idiopathic Arthritis. J Med Internet Res. 2010;12(3).
Article
Google Scholar
Lipstein EA, Muething KA, Dodds CM, Britto MT. “I’m the one taking it”: adolescent participation in chronic disease treatment decisions. J Adolesc Health. 2013;53(2):253–9.
Article
Google Scholar
Harry O, Huggins JL, Taylor J, Holland MJ, Ting TV. Assessing the utility and impact of musculoskeletal ultrasound in a large pediatric rheumatology clinic. Arthritis Rheumatol. 2017;69.
Modi AC, Guilfoyle SM, Mann KA, Rausch JR. A pilot randomized controlled clinical trial to improve antiepileptic drug adherence in young children with epilepsy. Epilepsia. 2016;57(3):e69–75.
Article
Google Scholar