Table 2 Demographic characteristics of the respondents
Question | US | UK | ||
|---|---|---|---|---|
Adolescents (N = 197) n (%) | Caregivers (N = 207) n (%) | Adolescents (N = 100) n (%) | Caregivers (N = 200) n (%) | |
How old are you? | ||||
Mean (SD) | 15.2 (0.9) | 38.1 (6.5) | 14.9 (0.7) | 38.8 (6.9) |
How old is your child with JIA? | ||||
Mean (SD) | N/A | 11.7 (4.0) | N/A | 11.9 (3.2) |
Do you consider yourself to be? | ||||
Female | 78 (39.6%) | 60 (29.0%) | 20 (20.0%) | 56 (28.0%) |
Male | 117 (59.4%) | 145 (70.0%) | 80 (80.0%) | 144 (72.0%) |
Transgender | 0 (0.0%) | 0 (0.0%) | 0 (0.0%) | 0 (0.0%) |
Other (e.g., gender fluid, non-binary) | 1 (0.5%) | 1 (0.5%) | 0 (0.0%) | 0 (0.0%) |
Prefer not to answer | 1 (0.5%) | 1 (0.5%) | 0 (0.0%) | 0 (0.0%) |
What is your child’s gender? | ||||
Female | N/A | 60 (29.0%) | N/A | 69 (34.5%) |
Male | N/A | 145 (70.0%) | N/A | 131 (65.5%) |
Transgender | N/A | 1 (0.5%) | N/A | 0 (0.0%) |
Other (e.g., gender fluid, non-binary) | N/A | 0 (0.0%) | N/A | 0 (0.0%) |
Prefer not to answer | N/A | 1 (0.5%) | N/A | 0 (0.0%) |
What is your ethnicity? (Please select all that apply) a | ||||
American Indian or Alaska Native | 1 (0.5%) | 4 (1.9%) | N/A | N/A |
Black or African American, non-Hispanic | 29 (14.7%) | 17 (8.2%) | N/A | N/A |
Black/African/Caribbean/Black British | N/A | N/A | 3 (3.0%) | 11 (5.5%) |
Asian or Pacific Islander | 1 (0.5%) | 9 (4.3%) | N/A | N/A |
Asian/Asian British | N/A | N/A | 9 (9.0%) | 26 (13.0%) |
White, non-Hispanic | 154 (78.2%) | 163 (78.7%) | 89 (89.0%) | 167 (83.5%) |
Hispanic | 15 (7.6%) | 18 (8.7%) | N/A | N/A |
Other/other ethnic groups | 0 (0.0%) | 0 (0.0%) | 0 (0.0%) | 0 (0.0%) |
Mixed/multiple ethnic groups | N/A | N/A | 1 (1.0%) | 5 (2.5%) |
Prefer not to share | 0 (0.0%) | 1 (0.5%) | 0 (0.0%) | 0 (0.0%) |
What is your child’s ethnicity? (Please select all that apply) a | ||||
American Indian or Alaska Native | N/A | 5 (2.4%) | N/A | N/A |
Black or African American, non-Hispanic | N/A | 17 (8.2%) | N/A | N/A |
Black/African/Caribbean/Black British | N/A | N/A | N/A | 11 (5.5%) |
Asian or Pacific Islander | N/A | 8 (3.9%) | N/A | N/A |
Asian/Asian British | N/A | N/A | N/A | 28 (14.0%) |
White, non-Hispanic | N/A | 163 (78.7%) | N/A | 166 (83.0%) |
Hispanic | N/A | 19 (9.2%) | N/A | N/A |
Other/other ethnic groups | N/A | 0 (0.0%) | N/A | 0 (0.0%) |
Prefer not to share | N/A | 1 (0.5%) | N/A | 0 (0.0%) |
Mixed/multiple ethnic groups | N/A | N/A | N/A | 4 (2.0%) |