Skip to main content

Table 1 Measures used in the 61 included studies (N = 516 associations)

From: A systematic review of the psychosocial factors associated with pain in children with juvenile idiopathic arthritis

Domain

Construct

Measure

Acronym

Frequency

Pain

Intensity

Pediatric Pain Questionnaire [100]

PPQ

168

E-Ouch [99]

–

44

Faces Pain Scale & Faces Pain Scale Revised [92, 97]

FPS(-R)

43

Childhood Health Assessment Questionnaire [98]

CHAQ

40

Patient-Reported Outcomes Measurement Information System [94]

PROMIS

9

Recalled Pain Inventory [95, 99]

RPI

4

Graded Chronic Pain Scale

GCPS

3

Pain Intensity Scale [96]

PIS

3

Child Health Assessment Questionnaire [93]

HAQ

2

SUPERKIDZ [65]

–

2

Juvenile Arthritis Multidimensional Assessment Report [101]

JAMAR

1

No reference

–

109

Frequency

Structured Pain Questionnaire [102]

SPQ

29

Faces Pain Scale & Faces Pain Scale Revised [92, 97]

FPS(-R)

7

Pain Intensity Scale [96]

PIS

3

Pediatric Pain Questionnaire [100]

PPQ

4

No reference

–

4

Sensitivity

Quantitative Sensory Testing [103]

QST

24

The Cold Pressor Task [104]

CPT

16

No reference

–

1

Primary Appraisals

Pain Unpleasantness

E-Ouch [99]

–

3

Recalled Pain Inventory [95, 99]

RPI

2

Pain Beliefs

Survey of Pain Attitudes [105]

SOPA

28

Secondary Appraisals—Internal

Self-Efficacy

Children’s Arthritis Self-Efficacy Scale [44]

CASE

9

Self-Esteem

Self-Perception Profile for Children and Adolescents [106, 107]

SPPC/A

3

Child Health Questionnaire [108]

CHQ

2

Stress

Patient-Reported Outcomes Measurement Information System [94]

PROMIS

2

Perceived Stress Scale [109]

PSS-10

1

No reference

–

1

Physical Appearance

Self-Perception Profile for Children and Adolescents [106, 107]

SPPC/A

3

Cognitive Function

Patient-Reported Outcomes Measurement Information System [94]

PROMIS

2

Parent Secondary Appraisals—Internal

Self-Efficacy

Parent Arthritis Self-Efficacy Scale [43]

PASE

16

Self-Esteem

Child Health Questionnaire [108]

CHQ

1

Secondary Appraisals -External

School Functioning

Pediatric Quality of Life Inventory – Core & Arthritis Modules [110, 111]

PedsQL

8

Childhood Health Assessment Questionnaire [98]

CHAQ

3

Self-Perception Profile for Children and Adolescents [106, 107]

SPPC/A

3

Child Health Assessment Questionnaire [93]

HAQ

2

Revised Children’s Manifest Anxiety Scale [112]

RCMAS

1

No reference

–

3

Social Functioning

Social Skills Rating System [113]

SSRS

15

Pediatric Quality of Life Inventory – Core & Arthritis Modules [110, 111]

PedsQL

10

Child Behavior Checklist [114]

CBCL

3

Self-Perception Profile for Children and Adolescents [106, 107]

SPPC/A

3

Revised Children’s Manifest Anxiety Scale [112]

RCMAS

2

Social Support Questionnaire – Revised [115]

SSQR

2

Parent Pain Responses

West Haven-Yale Multidimensional Pain Inventory [116]

WHYMPI

9

Family Relationships

Family Environment Scale [117]

FES

35

Child Health Questionnaire [108]

CHQ

4

No citation

–

2

Interventionsa

Pain Management Intervention [61]

–

9

Cognitive Behavioral Therapy Intervention [90]

CBT

1

Cognitive Behavioral Therapy Group Intervention [63]

CBT

10

Peer-Led Intervention [77]

iPeer2Peer

1

Self-Management Intervention [78]

TTC

3

Coping

Coping

Pain Coping Questionnaireb [82]

PCQ

76

Pain Catastrophizing Scale for Children [118]

PCS-C

9

Coping Strategies Questionnaire for Children [119, 120]

CSQ-C

1

No reference

–

2

Outcomes

General Mental Health

Pediatric Symptom Checklist [121]

PSC

8

Child Behavior Checklist [114]

CBCL

5

Child Health Questionnaire [108]

CHQ

2

Rutter Parental Screening Questionnaire [148]

–

1

Externalizing Symptoms

Child Behavior Checklist [114]

CBCL

5

Child Health Questionnaire [108]

CHQ

4

Self-Perception Profile for Children and Adolescents [106, 107]

SPPC/A

3

Internalizing Symptoms

Pediatric Quality of Life Inventory – Core & Arthritis Modules [110, 111]

PedsQL

8

Child Behavior Checklist [114]

CBCL

3

Child Vulnerability Scale [122]

CVS

1

Patient Health Questionnaire [123]

PHQ-4

1

No reference

–

4

Anxiety Symptoms

State-Trait Anxiety Inventory for Children [124]

STAI-C

12

Revised Children’s Manifest Anxiety Scale [112]

RCMAS

4

Pediatric Quality of Life Inventory – Core & Arthritis Modules [110, 111]

PedsQL

2

Patient-Reported Outcomes Measurement Information System [94]

PROMIS

2

Trauma Symptom Checklist for Children [125]

TSC-C

2

Screen for Child Anxiety Related Disorders [126]

SCARED

1

Mood/Depression Symptoms

Children’s Depression Inventory [127]

CDI

12

Mood and Feelings Questionnaire [128]

MFQ

12

Positive and Negative Affect Scale for Children [129]

PANAS-C

8

Child Behavior Checklist [114]

CBCL

6

Facial Affective Scale [130]

FAS

4

Patient-Reported Outcomes Measurement Information System [94]

PROMIS

3

Children’s Emotion Management Scale [131]

–

2

Differential Emotions Scale – IV [132]

DES-IV

2

Emotion Regulation Scale [133]

–

2

Hopelessness Scale for Children [134]

–

2

Revised Child Anxiety and Depression Scale [135]

RCADS

2

Trauma Symptom Checklist for Children [125]

TSC-C

2

Centre for Epidemiological Studies Depression Scale for Children [136]

CES-DC

1

Pain Interference/ Limitations

Recalled Pain Inventory [95, 99]

RPI

6

Child Health Questionnaire [108]

CHQ

4

E-Ouch [99]

–

3

Health-Related Quality of Life (HRQOL)

Pediatric Quality of Life Inventory – Core & Arthritis Modules [110, 111]

PedsQL

22

Juvenile Arthritis Quality of Life Questionnaire [146]

JAQQ

7

Child Health Questionnaire [108]

CHQ

5

Quality of My Life Scale [143]

QoML

3

Clinically Derived Global Score for Psychosocial Functioning [147]

CGAS

1

Well-being

Global Assessment of Well-being Visual Analogue Scale

–

20

Childhood Health Assessment Questionnaire [98]

CHAQ

7

World Health Organization Well-Being Index [145]

WHO-5

1

Parent Outcomes

General Mental Health

Lanyon Psychological Screening Inventory [137]

–

2

Self-Reporting Questionnaire [138]

SRQ-20

1

Anxiety Symptoms

Hospital Anxiety and Depression Scale [139]

HADS

3

Mood/

Depression Symptoms

Hospital Anxiety and Depression Scale [139]

HADS

3

Beck Depression Inventory [140]

BDI

3

Pain Interference/ Limitations

Revised Hassles and Uplifts Scale [141]

–

5

Child Health Questionnaire [108]

CHQ

4

Caregiver Burden Scale [142]

CBS

1

  1. a See Additional files 3 and 4 for results
  2. b Some studies used a preliminary version of this scale