Table 2 The shortened pain coping questionnaire for parents (mPCQpar). Response frequency (%) of all parents and mean and standard deviation (SD) of the scores in all parents and in parents to children and adolescents separately

Q1

ask the experts who treat my child about things related to my child’s pain.

127

1

14

32

40

12

3.5

0.9

56

3.6

0.9

71

3.4

0.9

Q2

tell a friend or spouse how I feel.

127

2

9

29

37

22

3.7

1.0

56

3.5

1.0

71

3.8

1.0

Q3

start doing something.

125

10

29

33

18

6

2.8

1.1

56

2.9

1.1

69

2.7

1.0

Q4

worry that my child’s pain will never stop.

127

11

32

25

24

6

2.8

1.1

56

2.8

1.1

71

2.8

1.2

Q5

talk with someone about how I feel.

127

2

19

27

40

11

3.4

1.0

56

3.2

0.9

71

3.6

1.0

Q6

try to focus on something else than my child’s pain.

126

14

24

29

28

3

2.8

1.1

55

3.0

1.1

71

2.7

1.1

Q7

quarrel or am tense and get nervous.

127

23

52

16

4

2

2.1

0.9

56

2.1

0.9

71

2.0

0.8

Q8

think all the time how much my child is aching.

127

12

43

23

16

3

2.5

1.0

56

2.6

1.0

71

2.5

1.0

Q9

try to figure out different ways to relieve my child’s pain.

127

1

15

1

45

36

4.2

0.7

56

4.2

0.7

71

4.2

0.7

Q10

say to myself that there is nothing to worry about my child.

127

12

19

38

22

8

2.9

1.1

56

3.2

1.2

71

2.8

1.0

Q11

think that nothing will help.

127

47

29

17

3

2

1.8

0.9

56

2.0

1.1

71

1.7

0.8

Q12

find out more information about the functioning of the body.

127

6

14

38

26

14

3.3

1.1

56

3.4

1.0

71

3.2

1.1

Q13

explain to myself that soon everything will be all right.

127

7

19

39

28

5

3.1

1.0

56

3.1

1.0

71

3.0

1.0

Q14

start pottering around with something with my child.

127

1

7

43

36

11

3.5

0.8

56

3.8

0.8

71

3.3

0.8

Q15

try not to think about my child’s pain.

126

9

27

37

23

2

2.8

1.0

56

3.0

1.0

70

2.7

0.9

Q16

think that my child’s pain will never ease off.

127

39

30

21

7

2

2.0

1.0

56

1.9

1.1

71

2.1

1.0

Q17

unburden my feelings to a friend or spouse.

127

6

13

27

35

17

3.4

1.1

56

3.3

1.1

71

3.5

1.1

Q18

assure myself that we can overcome anything at all.

127

2

9

20

42

25

3.8

1.0

56

4.0

0.9

71

3.6

1.0

Q19

do something that will take my child’s pain out of my mind.

127

8

26

42

18

5

2.9

1.0

56

3.0

1.0

71

2.8

0.9

Q20

worry about my child’s pain almost all the time.

127

25

40

19

11

3

2.2

1.1

56

2.2

1.0

71

2.3

1.1