From: Transitioning patients with juvenile idiopathic arthritis to adult care: the Nordic experience
 | Directly transferred (D) (n = 163) | Later referred (L) (n = 50) | Not transferred (N) (n = 195) | P-value [multiple comparison] * |
---|---|---|---|---|
HAQ, mean (SD) | 0.32 (0.52) | 0.13 (0.32) | 0.05 (0.27) | < 0.001 [D/L, D/N] |
Patients with active joints, n (%) | 45 (28) | 9 (18) | 8 (4) | < 0.001[D/L, D/N, L/N] |
Number of cumulative active joints, median (IQR) | 15.2 (11.8) | 8.8 (8.2) | 5.3 (5.6) | < 0.001 [D/L, D/N, L/N] |
DAS28, mean (SD) | 2.21 (1.31) | 1.79 (1.00) | 1.29 (0.75) | < 0.001 [D/L, D/N, L/N] |
VAS 0–100 mean (SD) | ||||
 Pain | 27 (26) | 21 (26) | 9 (16) | < 0.001 [D/N, LN] |
 Physicians’ global | 13 (20) | 8 (16) | 2 (8) | < 0.001 [D/N, L/N] |
 Patients’ global | 27 (29) | 18 (23) | 8 (16) | < 0.001 [D/L, D/N, L/N] |
 Fatigue | 43 (28) | 36 (27) | 35 (27) | 0.045 [D/N] |
JADI-A, n (%) |  |  |  | < 0.001 [D/L, D/N, L/N] |
 0 | 115 (71) | 43 (86) | 187 (96) |  |
 1 | 19 (12) | 4 (8) | 5 (3) |  |
 2–4 | 21 (13) | 2 (4) | 3 (2) |  |
  ≥ 5 | 8 (5) | 1 (2) | 0 (0) |  |
CAM, n (%) | 21 (13) | 6 (12) | 22 (11) | 0.90 |
Medication, n (%) | 95 (58) | 14 (28) | 0 (0) | < 0.001 [D/N, L/N] |
 Synthetic DMARDs, n | 62 | 11 | 0 |  |
 Biologic DMARDs, n | 65 | 4 | 0 |  |
 Systemic steroids, n | 8 | 2 | 0 |  |
SF-36, mean (SD): | ||||
 Physical component score | 47.8 (10.8) | 49.5 (10.5) | 55.5 (6.5) | < 0.001 [D/N, L/N] |
 Mental component score | 47.7 (12.7) | 51.2 (8.6) | 49.8 (11.0) | 0.12 |
Socioeconomics n (%) | Â | Â | Â | 0.089 |
 Student | 71 (45) | 17 (35) | 85 (44) |  |
 Working | 68 (43) | 28 (58) | 98 (51) |  |
 Unemployed | 5 (3) | 2 (4) | 5 (3) |  |
 Disability pension | 14 (9) | 1 (2) | 5 (3) |  |
  JIA-related | 6 (4) | 0 (0) | 0 (0) |  |
  Other reasons | 8 (5) | 1 (2) | 5 (3) |  |
Physical exercise | Â | Â | Â | 0.68 |
  < once a week | 24 (17) | 5 (13) | 19 (12) |  |
 1–3 times a week | 89 (61) | 26 (67) | 102 (62) |  |
 4–7 times a week | 32 (22) | 8 (21) | 43 (26) |  |
Physiotherapy, ongoing, n (%) | 17 (11) | 4 (10) | 6 (4) | 0.030 [D/N] |
Inactive diseasea off medication between 8 and 18 year study visits, n (%) | 10 (6) | 8 (16) | 146 (75) | < 0.001 [D/L, D/N, L/N] |
JIA-U ever, n (%) | 41 (25) | 15 (30) | 18 (9) | < 0.001 [D/N, L/N] |