Table 1 Transition practices in participating Nordic study sites
From: Transitioning patients with juvenile idiopathic arthritis to adult care: the Nordic experience
Transition practices | DEN/ Copenhagen | DEN/ Århus | FIN Helsinki | NOR/ Tromsø | NOR/ Trondheim | SWE/ Multiple sites |
|---|---|---|---|---|---|---|
1. A multidisciplinary team with appropriate education is responsible for the treatment and care of young people (YP) with juvenile idiopathic arthritis (JIA) during the transition process YES/NO | YES | YES | YES | YES | YES | YES |
 a. paediatric rheumatologist | YES | YES | YES | YES | YES | YES |
 b. paediatric rheumatologist nurse | YES | YES | YES | YES | YES | YES |
2. The transition process starts well in advance in early adolescence (between 11 and 14 years, or immediately if the diagnosis is made later) YES/NO/ Varying | NO | YES | YES | YES | YES | Varying |
3. Adolescents are first seen alone at the appointment and the parents join the visit later YES/NO/ Varying | NO | YES | YES | Varying | NO | Varying |
4. The average age at transition YEAR | 18 | 18 | 16 | 18 | 18 | 18 |
5. There is a transition program with special categories or a checklist to complete before the transferal to an adult clinic YES/NO | NO | YES | YES | YES | NO | NO |
6. YP with JIA regularly fill in health-related questionnaires and estimate their VAS-values YES/NO | YES | YES | YES | YES | YES | YES |
7. There are physiotherapist and/or psychologist and/or occupational therapist and/or rehabilitation counsellor services before the transferal YES/NO | Â | Â | Â | Â | Â | Â |
 a. at least one of the above-mentioned services is mandatory for all | NO | YES | NO | YES | YES | NO |
 b. if needed | YES | YES | YES | YES | YES | YES |
8. Criteria for transition YES/NO | Â | Â | Â | Â | Â | Â |
 a. all patients are transferred | NO | NO | NO | NO | NO | NO |
 b. active disease/ongoing medication is needed | YES | YES | YES | YES | NO | YES |
9. There is a specific transition clinic at the adult rheumatology clinic with engagement in adolescent rheumatology YES/NO | NO | YES | YES | No | YES | NO |
10. There is direct communication with the paediatric and adult team before the actual transferal YES/NO | Â | Â | Â | Â | Â | Â |
 a. for every YP with JIA | NO | YES | NO | NO | NO | NO |
 b. for complex cases | YES | YES | YES | YES | YES | YES |
11. YP with JIA visit the adult clinic in advance YES/NO/IF NEEDED | NO | YES | IF NEEDED | YES | YES | IF NEEDED |
12. There are regular meetings with the paediatric and adult teams to evaluate the transition practise YES/NO/varying | YES | YES | YES | NO | YES | Varying |
13. There is a freely accessible electronic webpage about transition YES/NO | NO | NO | YES | NO | NO | NO |