Skip to main content

Table 2 CAPTURE-JIA data items with >40% missing data in paper pilot

From: Quality improvement in juvenile idiopathic arthritis: a mixed-methods implementation pilot of the CAPTURE-JIA dataset

Data item

% missing (if item required)

Relevant co-morbidities?

60

Macrophage activation syndrome?

100

Has the ILAR subtype changed since previous visit?

50

Morning stiffness lasting >15 minutes

42

History of any form of uveitis?

52

Date started uveitis medication?

50

Uveitis medication details

83

Counselled prior to new disease-modifying drug (DMARD) / biologic?

56

Enrolled in national biologic registries if new DMARD / biologic?

48

Joint count (homunculus or table format)

48

Physician assessment of systemic disease activity (VAS)

75

Erythrocyte sedimentation rate (ESR)

74

C reactive protein (CRP)

92

Plasma viscosity

100