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Table 1 HCT curriculum and transition modules

From: A novel transition clinic structure for adolescent and young adult patients with childhood onset rheumatic disease improves transition outcomes

Module Target age Patient materials and data Parent materials and data
1 (12–14 yo) o Introductory sheet
o Transition policy
o Introductory sheet
o Transition policy
2 (14–18 yo) o Plan of care
o Frequently asked questions …
o Transition readiness assessment
o Transition readiness assessment
3 (14–18 yo) o Medical summary and emergency care plan
o Medication list
 
4 (18–21 yo) o “10 things to know”
o HAQ
o Mind the Gap
o PHQ 9
o SF 36
o Mind the Gap
5 (18–26 yo) o Medical summary and emergency care plan
o Medication list
o Plan of care
o Transition readiness assessment
o Transfer Letter template
o Transition readiness assessment
6 ≤ 12 months from 1st visit with Adult Rheumatology o Transition feedback survey
o PROMIS® Self-Efficacy for Managing Chronic Conditions-Medications and Treatments
o Transition feedback survey
  1. HCT health care transition, yo years old, HAQ Stanford Health Assessment Questionnaire, PHQ 9 Patient Health Questionnaire 9, SF 36 RAND Short Form 36, PROMIS Patient-Reported Outcomes Measurement Information System