Table 1 HCT curriculum and transition modules
Module | Target age | Patient materials and data | Parent materials and data |
|---|---|---|---|
1 | (12–14 yo) | o Introductory sheet o Transition policy | o Introductory sheet o Transition policy |
2 | (14–18 yo) | o Plan of care o Frequently asked questions … o Transition readiness assessment | o Transition readiness assessment |
3 | (14–18 yo) | o Medical summary and emergency care plan o Medication list | |
4 | (18–21 yo) | o “10 things to know” o HAQ o Mind the Gap o PHQ 9 o SF 36 | o Mind the Gap |
5 | (18–26 yo) | o Medical summary and emergency care plan o Medication list o Plan of care o Transition readiness assessment o Transfer Letter template | o Transition readiness assessment |
6 | ≤ 12 months from 1st visit with Adult Rheumatology | o Transition feedback survey o PROMIS® Self-Efficacy for Managing Chronic Conditions-Medications and Treatments | o Transition feedback survey |