From: Proceedings of the 27th European Paediatric Rheumatology Congress (PReS 2021)
 |  | GOLD – Disease not persistent N = 57 | GOLD – Disease persistent N = 135 | Aurum – Disease not persistent N = 264 | Aurum – Disease persistent N = 639 |
---|---|---|---|---|---|
Duration of follow-up (years), median (interquartile range (IQR) | 9.9(7.1, 12.5) | 9.2(6.3, 12.0) | 12.5(8.5, 15.4) | 12.6(8.9, 15.6) | |
Age first code, n(%) | 0-<4 years | 8(14.0) | 7(5.2) | 41(15.5) | 108(16.9) |
4-<9 years | 13(22.8) | 15(11.1) | 79(29.9) | 141(22.1) | |
9-<16 years | 36(63.2) | 113(83.7) | 144(54.5) | 390(61.0) | |
Gender, n (%) | Male | 26( 45.6) | 49(36.3) | 130( 49.2) | 228(35.7) |
Female | 31( 54.4) | 86(63.7) | 134( 50.8) | 411(64.3) | |
Discharged, n(%) | 16-18 years | - | 45(33.3) | - | 186(29.1) |
>18 years | - | 10(7.4) | - | 76(11.9) | |
Age last appointment if discharged, median (IQR) | 13.9(12.6, 15.3) | 17.8(17.0, 20.4) | 13.7(11.9, 15.2) | 18.2(16.9, 20.7) | |
Disease duration at last appointment if discharged, median (IQR) | 2.9(1.4, 5.7) | 6.3(3.7, 9.6) | 3.4(1.6, 6.3) | 7.6(4.3, 12.2) |