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Table 1 Summary of patients attending the national paediatric cryopyrin associated periodic fever syndrome service

From: Retrospective case series describing the efficacy, safety and cost-effectiveness of a vial-sharing programme for canakinumab treatment for paediatric patients with cryopyrin-associated periodic syndrome

Total number of patients who ever attended the GOSH CAPS service

39

Total number of patients included for study

20

Total number of patients with negative NLRP3 mutation

4

Total number of doses of canakinumab ever received per patient

Median

14

Range

7–41 doses

Age

Median

9 years

Range

4–14 years

Gender

Male

10

Female

10

  1. CAPS Cryopyrin associated periodic fever syndrome, GOSH Great Ormond Street Hospital