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Table 1 Summary of patients attending the national paediatric cryopyrin associated periodic fever syndrome service

From: Retrospective case series describing the efficacy, safety and cost-effectiveness of a vial-sharing programme for canakinumab treatment for paediatric patients with cryopyrin-associated periodic syndrome

Total number of patients who ever attended the GOSH CAPS service 39
Total number of patients included for study 20
Total number of patients with negative NLRP3 mutation 4
Total number of doses of canakinumab ever received per patient Median 14
Range 7–41 doses
Age Median 9 years
Range 4–14 years
Gender Male 10
Female 10
  1. CAPS Cryopyrin associated periodic fever syndrome, GOSH Great Ormond Street Hospital