Table 2 Demographic characteristics of YP and HCPs included in the study
From: Development of a benchmarking toolkit for adolescent and young adult rheumatology services (BeTAR)
| Phase 2 | Phase 3 | Phase 4 | Phase 5 | |
|---|---|---|---|---|
| Total no. of YPa, n | 38 | 27 | 28 | |
| Age | ||||
| Median in years (range) | 19 (15–24) | 18 (12–24) | 19 (12–24) | |
| Mean in years (SD) | 19.1 (2.7) | 18.5 (3) | 18.8 (3.1) | |
| Age of diagnosis | ||||
| Median in years (range) | 10 (1–16) | 10 (1–16) | 10.5 (2–15) | |
| Mean in years (SD) | 9.5 (4.4) | 9.4 (4.8) | 10 (3.8) | |
| Sex | ||||
| Female, n (%) | 31 (82) | 18 (67) | 17 (61) | |
| Male, n (%) | 7 (18) | 9 (33) | 11 (39) | |
| Ethnicity | ||||
| White, n (%) | 24 (63) | 17 (63) | 18 (64) | |
| Asian, n (%) | 9 (24) | 5 (19) | 7 (25) | |
| Black, n (%) | 3 (8) | 3 (11) | 3 (7) | |
| Other, n (%) | 2 (5) | 2 (7) | 2 (4) | |
| Type of diagnosis | ||||
| JIA, n (%) | 27 (71) | 20 (74) | 17 (61) | |
| JSLE, n (%) | 7 (18) | 4 (15) | 4 (14) | |
| JDM, n (%) | 4 (11) | 3 (11) | 7 (25) | |
| Total no. of HCPsb, n | 22 | 7 | ||
| Clinician, n (%) | 16 (73) | 5 (71) | ||
| Clinical nurse specialists, n (%) | 5 (23) | 2 (29) | ||
| Physiotherapist, n (%) | 1 (4) | 0 | ||
| Years in practice | ||||
| Median (range) | 10.5 (1–34) | 11 (3–34) | ||
| Mean (SD) | 13.3 (9.3) | 14.5 (8.9) |