Table 2 Demographic characteristics of YP and HCPs included in the study
From: Development of a benchmarking toolkit for adolescent and young adult rheumatology services (BeTAR)
| Â | Phase 2 | Phase 3 | Phase 4 | Phase 5 |
|---|---|---|---|---|
Total no. of YPa, n | 38 | Â | 27 | 28 |
Age | Â | Â | Â | |
 Median in years (range) | 19 (15–24) |  | 18 (12–24) | 19 (12–24) |
 Mean in years (SD) | 19.1 (2.7) | 18.5 (3) | 18.8 (3.1) | |
Age of diagnosis | Â | Â | Â | |
 Median in years (range) | 10 (1–16) | 10 (1–16) | 10.5 (2–15) | |
 Mean in years (SD) | 9.5 (4.4) | 9.4 (4.8) | 10 (3.8) | |
Sex | Â | Â | Â | |
 Female, n (%) | 31 (82) | 18 (67) | 17 (61) | |
 Male, n (%) | 7 (18) | 9 (33) | 11 (39) | |
Ethnicity | Â | Â | Â | |
 White, n (%) | 24 (63) | 17 (63) | 18 (64) | |
 Asian, n (%) | 9 (24) | 5 (19) | 7 (25) | |
 Black, n (%) | 3 (8) | 3 (11) | 3 (7) | |
 Other, n (%) | 2 (5) | 2 (7) | 2 (4) | |
Type of diagnosis | Â | Â | Â | |
 JIA, n (%) | 27 (71) | 20 (74) | 17 (61) | |
 JSLE, n (%) | 7 (18) | 4 (15) | 4 (14) | |
 JDM, n (%) | 4 (11) | 3 (11) | 7 (25) | |
Total no. of HCPsb, n | Â | 22 | Â | 7 |
 Clinician, n (%) | 16 (73) | 5 (71) | ||
 Clinical nurse specialists, n (%) | 5 (23) | 2 (29) | ||
 Physiotherapist, n (%) | 1 (4) | 0 | ||
Years in practice | Â | Â | ||
 Median (range) |  | 10.5 (1–34) |  | 11 (3–34) |
 Mean (SD) |  | 13.3 (9.3) |  | 14.5 (8.9) |