Seeking the state of the art in standardized measurement of health care resource use and costs in juvenile idiopathic arthritis: a scoping review

Kip, Michelle M. A.; Currie, Gillian; Marshall, Deborah A.; Grazziotin Lago, Luiza; Twilt, Marinka; Vastert, Sebastiaan J.; Swart, Joost F.; Wulffraat, Nico; Yeung, Rae S. M.; Benseler, Susanne M.; IJzerman, Maarten J.

doi:10.1186/s12969-019-0321-x

Pediatric Rheumatology

Table 4 Overview of data sources used to obtain costs (unit costs)

From: Seeking the state of the art in standardized measurement of health care resource use and costs in juvenile idiopathic arthritis: a scoping review

Category	Type of cost item	Total	Unit costs obtained from [N (references)]
Category	Type of cost item	(N [references])	Medical charges / payment by results database / (average) reimbursement fee	Published / available data(base) or literature / guidelines	Hospital-based fees / costs	Questionnaire / inquiry with parent(s) / child; recall	Provided by manufacturer / supplier (e.g. pharmacist)	Assumption / not specified	Not costed
Medical costs	Medication	16 [9, 32,33,34, 36,37,38,39,40,41,42,43,44, 47,48,49]	8 [9, 32, 33, 36, 40, 41, 43, 49]	8 [9, 32, 34, 38, 42, 44, 47, 48]	1 [38]	2 [33, 37]	1 [39]
	Outpatient and inpatient hospital visits	15 [9, 32,33,34, 36,37,38,39,40,41,42, 44, 47,48,49]	6 [9, 32,33,34, 41, 42]	10 [32, 34, 36, 38, 40,41,42, 47,48,49]	5 [38, 39, 44, 47, 48]	2 [33, 37]
	Medical professional visits and care	13 [9, 32, 34, 36,37,38, 40,41,42, 44, 47,48,49]	9 [9, 32, 34, 36, 41, 42, 47,48,49]	8 [9, 32, 34, 38, 40, 41, 47, 48]	4 [38, 44, 47, 48]	1 [37]
	Other medical visits (including paramedical care)	10 [32, 33, 37,38,39, 41, 42, 44, 47, 48]	6 [32, 33, 41, 42, 47, 48]	5 [32, 38, 41, 47, 48]	5 [38, 39, 44, 47, 48]	2 [33, 37]
	Laboratory tests	14 [9, 32,33,34, 36, 38,39,40,41,42, 44, 47,48,49]	9 [9, 32,33,34, 36, 40, 47,48,49]	6 [32, 34, 38, 41, 42, 49]	4 [36, 38, 39, 44]	1 [33]
	Imaging	11 [9, 32,33,34, 36, 38, 40, 44, 47,48,49]	8 [9, 32,33,34, 36, 38, 47, 48]	4 [32, 34, 38, 49]	4 [40, 44, 47, 48]	1 [33]
	Splints and/or devices	10 [9, 33, 34, 36, 37, 40,41,42, 47, 48]	4 [33, 36, 40, 41]	2 [47, 48]		2 [33, 37]	3 [9, 34, 36]	1 [42]
	Supplements and/or alternative medicine (e.g. vitamins, minerals, herbal medicine)	8 [35, 38, 41, 42, 46,47,48,49]	4 [35, 41, 46, 49]	4 [38, 42, 47, 48]	1 [38]
	Drug administration costs	6 [32, 37, 39, 47,48,49]		3 [32, 47, 48]	1 [49]	1 [37]		1 [39]
	Overhead/fixed resources	1 [38]			1 [38]
Out-of-pocket patient/family costs	Transportation costs	10 [9, 33, 34, 36, 37, 39, 41, 42, 44, 50]	2 [9, 39]	1 [36]		8 [33, 34, 36, 37, 41, 42, 44, 50]
	(Other) out-of-pocket costs	6 [33, 37, 41, 42, 44, 50]				6 [33, 37, 41, 42, 44, 50]
	Social care services/ home care/ private and community services/ domestic help	4 [9, 34, 41, 42]	1 [9]	1 [34]		2 [41, 42]
	School costs	2 [33, 42]				2 [33, 42]
Productivity costs	Productivity loss of caregivers (including informal caregiving)	10 [9, 33, 34, 36,37,38,39, 42, 45, 49]		8 [9, 34, 37,38,39, 42, 45, 49]		3 [33, 36, 37]
	Missed school days and productivity loss of patients	5 [9, 34, 36, 41, 42]		4 [9, 34, 41, 42]					2 [36, 41]
	Missed school days of siblings	0

This table shows the unit costs that are included in the 20 articles from this scoping review, and the data sources that are used to obtain these. The number of articles for each of the different data sources, and the accompanying references, are provided

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ISSN: 1546-0096

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