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Table 4 Overview of data sources used to obtain costs (unit costs)

From: Seeking the state of the art in standardized measurement of health care resource use and costs in juvenile idiopathic arthritis: a scoping review

Category Type of cost item Total Unit costs obtained from [N (references)]
(N [references]) Medical charges / payment by results database / (average) reimbursement fee Published / available data(base) or literature / guidelines Hospital-based fees / costs Questionnaire / inquiry with parent(s) / child; recall Provided by manufacturer / supplier (e.g. pharmacist) Assumption / not specified Not costed
Medical costs Medication 16 [9, 32,33,34, 36,37,38,39,40,41,42,43,44, 47,48,49] 8 [9, 32, 33, 36, 40, 41, 43, 49] 8 [9, 32, 34, 38, 42, 44, 47, 48] 1 [38] 2 [33, 37] 1 [39]   
Outpatient and inpatient hospital visits 15 [9, 32,33,34, 36,37,38,39,40,41,42, 44, 47,48,49] 6 [9, 32,33,34, 41, 42] 10 [32, 34, 36, 38, 40,41,42, 47,48,49] 5 [38, 39, 44, 47, 48] 2 [33, 37]    
Medical professional visits and care 13 [9, 32, 34, 36,37,38, 40,41,42, 44, 47,48,49] 9 [9, 32, 34, 36, 41, 42, 47,48,49] 8 [9, 32, 34, 38, 40, 41, 47, 48] 4 [38, 44, 47, 48] 1 [37]    
Other medical visits (including paramedical care) 10 [32, 33, 37,38,39, 41, 42, 44, 47, 48] 6 [32, 33, 41, 42, 47, 48] 5 [32, 38, 41, 47, 48] 5 [38, 39, 44, 47, 48] 2 [33, 37]    
Laboratory tests 14 [9, 32,33,34, 36, 38,39,40,41,42, 44, 47,48,49] 9 [9, 32,33,34, 36, 40, 47,48,49] 6 [32, 34, 38, 41, 42, 49] 4 [36, 38, 39, 44] 1 [33]    
Imaging 11 [9, 32,33,34, 36, 38, 40, 44, 47,48,49] 8 [9, 32,33,34, 36, 38, 47, 48] 4 [32, 34, 38, 49] 4 [40, 44, 47, 48] 1 [33]    
Splints and/or devices 10 [9, 33, 34, 36, 37, 40,41,42, 47, 48] 4 [33, 36, 40, 41] 2 [47, 48]   2 [33, 37] 3 [9, 34, 36] 1 [42]  
Supplements and/or alternative medicine (e.g. vitamins, minerals, herbal medicine) 8 [35, 38, 41, 42, 46,47,48,49] 4 [35, 41, 46, 49] 4 [38, 42, 47, 48] 1 [38]     
Drug administration costs 6 [32, 37, 39, 47,48,49]   3 [32, 47, 48] 1 [49] 1 [37]   1 [39]  
Overhead/fixed resources 1 [38]    1 [38]     
Out-of-pocket patient/family costs Transportation costs 10 [9, 33, 34, 36, 37, 39, 41, 42, 44, 50] 2 [9, 39] 1 [36]   8 [33, 34, 36, 37, 41, 42, 44, 50]    
(Other) out-of-pocket costs 6 [33, 37, 41, 42, 44, 50]     6 [33, 37, 41, 42, 44, 50]    
Social care services/ home care/ private and community services/ domestic help 4 [9, 34, 41, 42] 1 [9] 1 [34]   2 [41, 42]    
School costs 2 [33, 42]     2 [33, 42]    
Productivity costs Productivity loss of caregivers (including informal caregiving) 10 [9, 33, 34, 36,37,38,39, 42, 45, 49]   8 [9, 34, 37,38,39, 42, 45, 49]   3 [33, 36, 37]    
Missed school days and productivity loss of patients 5 [9, 34, 36, 41, 42]   4 [9, 34, 41, 42]      2 [36, 41]
Missed school days of siblings 0        
  1. This table shows the unit costs that are included in the 20 articles from this scoping review, and the data sources that are used to obtain these. The number of articles for each of the different data sources, and the accompanying references, are provided