Table 2 Parent-Proxy and Patient Reported HRQoL Scores (According to the PedsQL SF-15)
From: Patient-proxy agreement on health-related quality of life in juvenile fibromyalgia syndrome
Characteristic | N | Parent-Proxy Score, Mean (SD) | Patient Score, Mean (SD) | Discrepancy Score, Mean (SD) |
|---|---|---|---|---|
Total HRQoL | ||||
 All subjects | 65 | 49.5 (15.7) | 52.3 (18.3) | 20.0 (14.0) |
 Female | 57 | 49.9 (14.9) | 52.1 (17.8) | 20.6 (13.9) |
 Male | 8 | 46.5 (21.5) | 54.0 (22.9) | 15.6 (15.2) |
 8–12 years | 11 | 49.2 (17.2) | 53.2 (20.1) | 16.4 (14.9) |
 13–18 years | 54 | 49.6 (15.6) | 52.2 (18.2) | 20.7 (13.9) |
Physical HRQoL | ||||
 All subjects | 65 | 25.7 (21.1) | 40.2 (24.9) | 15.0 (14.3) |
 Female | 57 | 35.7 (20.0) | 39.6 (23.8) | 15.1 (14.2) |
 Male | 8 | 35.6 (30.0) | 45.0 (33.1) | 14.4 (16.1) |
 8–12 years | 11 | 49.5 (23.2) | 50.5 (26.0) | 17.3 (14.0) |
 13–18 years | 54 | 32.9 (19.8) | 38.2 (24.3) | 14.5 (14.4) |
Psychosocial HRQoL | ||||
 All subjects | 65 | 56.6 (18.3) | 58.4 (21.0) | 12.1 (9.9) |
 Female | 57 | 57.24 (17.8) | 58.4 (21.4) | 12.2 (9.6) |
 Male | 8 | 51.9 (21.7) | 58.4 (19.6) | 11.6 (12.6) |
 8–12 years | 11 | 49.1 (19.2) | 54.5 (19.9) | 9.1 (11.5) |
 13–18 years | 54 | 58.1 (17.8) | 59.2 (21.3) | 12.7 (9.5) |
Emotional Functioning HRQoL | ||||
 All subjects | 65 | 51.3 (21.5) | 54.6 (23.9) | 15.1 (14.5) |
 Female | 57 | 50.9 (21.0) | 54.3 (23.7) | 15.7 (14.8) |
 Male | 8 | 54.7 (26.5) | 56.3 (26.9) | 10.9 (11.9) |
 8–12 years | 11 | 44.9 (22.7) | 51.7 (18.3) | 14.8 (13.2) |
 13–18 years | 54 | 52.7 (21.3) | 55.1 (24.9) | 15.2 (14.8) |
Social Functioning HRQoL | ||||
 All subjects | 65 | 72.1 (26.1) | 77.1 (26.1) | 16.0 (14.8) |
 Female | 57 | 72.8 (26.0) | 76.9 (27.0) | 15.8 (14.2) |
 Male | 8 | 66.7 (27.8) | 78.1 (18.9) | 17.7 (19.1) |
 8–12 years | 11 | 60.6 (23.9) | 65.9 (28.2) | 17.4 (16.0) |
 13–18 years | 54 | 74.4 (26.0) | 79.3 (25.3) | 15.7 (14.6) |
School Functioning HRQoL | ||||
 All subjects | 65 | 47.6 (25.2) | 44.4 (25.7) | 18.1 (14.8) |
 Female | 57 | 49.6 (25.0) | 44.8 (26.1) | 18.0 (14.8) |
 Male | 8 | 33.3 (23.6) | 41.7 (24.0) | 18.8 (15.9) |
 8–12 years | 11 | 43.2 (22.9) | 47.0 (25.3) | 15.9 (13.7) |
 13–18 years | 54 | 48.5 (25.8) | 43.9 (25.9) | 18.6 (15.2) |