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Table 2 Parent-Proxy and Patient Reported HRQoL Scores (According to the PedsQL SF-15)

From: Patient-proxy agreement on health-related quality of life in juvenile fibromyalgia syndrome

Characteristic N Parent-Proxy Score, Mean (SD) Patient Score, Mean (SD) Discrepancy Score, Mean (SD)
Total HRQoL
 All subjects 65 49.5 (15.7) 52.3 (18.3) 20.0 (14.0)
 Female 57 49.9 (14.9) 52.1 (17.8) 20.6 (13.9)
 Male 8 46.5 (21.5) 54.0 (22.9) 15.6 (15.2)
 8–12 years 11 49.2 (17.2) 53.2 (20.1) 16.4 (14.9)
 13–18 years 54 49.6 (15.6) 52.2 (18.2) 20.7 (13.9)
Physical HRQoL
 All subjects 65 25.7 (21.1) 40.2 (24.9) 15.0 (14.3)
 Female 57 35.7 (20.0) 39.6 (23.8) 15.1 (14.2)
 Male 8 35.6 (30.0) 45.0 (33.1) 14.4 (16.1)
 8–12 years 11 49.5 (23.2) 50.5 (26.0) 17.3 (14.0)
 13–18 years 54 32.9 (19.8) 38.2 (24.3) 14.5 (14.4)
Psychosocial HRQoL
 All subjects 65 56.6 (18.3) 58.4 (21.0) 12.1 (9.9)
 Female 57 57.24 (17.8) 58.4 (21.4) 12.2 (9.6)
 Male 8 51.9 (21.7) 58.4 (19.6) 11.6 (12.6)
 8–12 years 11 49.1 (19.2) 54.5 (19.9) 9.1 (11.5)
 13–18 years 54 58.1 (17.8) 59.2 (21.3) 12.7 (9.5)
Emotional Functioning HRQoL
 All subjects 65 51.3 (21.5) 54.6 (23.9) 15.1 (14.5)
 Female 57 50.9 (21.0) 54.3 (23.7) 15.7 (14.8)
 Male 8 54.7 (26.5) 56.3 (26.9) 10.9 (11.9)
 8–12 years 11 44.9 (22.7) 51.7 (18.3) 14.8 (13.2)
 13–18 years 54 52.7 (21.3) 55.1 (24.9) 15.2 (14.8)
Social Functioning HRQoL
 All subjects 65 72.1 (26.1) 77.1 (26.1) 16.0 (14.8)
 Female 57 72.8 (26.0) 76.9 (27.0) 15.8 (14.2)
 Male 8 66.7 (27.8) 78.1 (18.9) 17.7 (19.1)
 8–12 years 11 60.6 (23.9) 65.9 (28.2) 17.4 (16.0)
 13–18 years 54 74.4 (26.0) 79.3 (25.3) 15.7 (14.6)
School Functioning HRQoL
 All subjects 65 47.6 (25.2) 44.4 (25.7) 18.1 (14.8)
 Female 57 49.6 (25.0) 44.8 (26.1) 18.0 (14.8)
 Male 8 33.3 (23.6) 41.7 (24.0) 18.8 (15.9)
 8–12 years 11 43.2 (22.9) 47.0 (25.3) 15.9 (13.7)
 13–18 years 54 48.5 (25.8) 43.9 (25.9) 18.6 (15.2)
  1. Legend. Discrepancy score is the mean of the absolute value of parent score minus child score. HRQoL indicates health-related quality of life (Pediatric Quality of Life Inventory, Version 4.0 Generic Core Scales [PedsQL]; 0–100; higher scores indicate better HRQoL