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Table 1 Baseline Characteristics and Patient Demographics (n = 284)

From: Disease burden and social impact of pediatric chronic nonbacterial osteomyelitis from the patient and family perspective

Characteristics

 

n*

Median age of first CNO symptoms, year (range)

8 (1–19)

 

Median age of CNO diagnosis, year (range)

10 (2–22+)

 

Survey completed by parent (%)

87

246

Male (%)

34

246

Race, white/Caucasian (%)

92

245

Ethnicity, non-Hispanic (%)

89

227

Country (%)

 

247

 North America

70

 

 Europe

22

 

 Other

8

 

Time from symptom onset and 1st pediatric rheumatologist visit (%)

 

239

  < 6 mo

32

 

 6–12 mo

20

 

  > 12 mo

48

 

Physicians seen prior to CNO diagnosis (%)

 

284

 PCP

77

 

 Orthopedic Surgeon

51

 

 Infectious Disease

31

 

Biopsy performed (%)

79

213

Received antibiotics prior to CNO diagnosis (%)

35

284

 Treated with antibiotics > 6 mo

24

96

Comorbid Conditions (%)

 

284

 Acne

11

 

 Psoriasis

10

 

 IBD

9

 

 PPP

8

 

 JIA (excluding ERA)

6

 

 AS/ERA

3

 

 Uveitis

3

 
  1. PCP = primary care physician; IBD = inflammatory bowel disease; AS/ERA = Ankylosing Spondylitis/Enthesitis related arthritis; JIA = juvenile idiopathic arthritis; PPP = Palmoplantar pustulosis; mo = month
  2. *= number of participants who responded to survey question