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Table 1 Baseline Characteristics and Patient Demographics (n = 284)

From: Disease burden and social impact of pediatric chronic nonbacterial osteomyelitis from the patient and family perspective

Characteristics   n*
Median age of first CNO symptoms, year (range) 8 (1–19)  
Median age of CNO diagnosis, year (range) 10 (2–22+)  
Survey completed by parent (%) 87 246
Male (%) 34 246
Race, white/Caucasian (%) 92 245
Ethnicity, non-Hispanic (%) 89 227
Country (%)   247
 North America 70  
 Europe 22  
 Other 8  
Time from symptom onset and 1st pediatric rheumatologist visit (%)   239
  < 6 mo 32  
 6–12 mo 20  
  > 12 mo 48  
Physicians seen prior to CNO diagnosis (%)   284
 PCP 77  
 Orthopedic Surgeon 51  
 Infectious Disease 31  
Biopsy performed (%) 79 213
Received antibiotics prior to CNO diagnosis (%) 35 284
 Treated with antibiotics > 6 mo 24 96
Comorbid Conditions (%)   284
 Acne 11  
 Psoriasis 10  
 IBD 9  
 PPP 8  
 JIA (excluding ERA) 6  
 AS/ERA 3  
 Uveitis 3  
  1. PCP = primary care physician; IBD = inflammatory bowel disease; AS/ERA = Ankylosing Spondylitis/Enthesitis related arthritis; JIA = juvenile idiopathic arthritis; PPP = Palmoplantar pustulosis; mo = month
  2. *= number of participants who responded to survey question