Table 3 Questionnaire results of YP transferred to the adult or adolescent JIA-clinic
Questionnaires | Responders transferred to the adult clinic N = 28 | Responders transferred to the adolescent JIA clinic N = 46 | p-value |
|---|---|---|---|
VAS satisfaction with transition ± (mean, SD) | 7.7 (0.8) | 7.5 (1.9) | 0.79 |
OYOF-TES ± ± (mean, SD) | 72.0 (14.7) | 74.5 (12.1) | 0.44 |
Treatment recommendations in the adult care setting are similar to those I used to receive in pediatric care (agreed,%) | 85.7 | 79.5 | 0.51 |
There was good collaboration between pediatric and adult care (agreed,%) | 78.6 | 80 | 0.88 |
OYOF-SES ± ± ± (mean, SD) | 59.7 (2.9) | 58.2 (5.0) | 0.42 |
Independent visits physician (yes) | 69% | 47% | 0.06 |
Independent visits nurse (yes) | 75% | 44% | 0.01* |
Important topics discussed (yes) | 97% | 96% | 0.83 |
I order my medication at the pharmacy by myself (yes) | 83% | 52% | 0.008* |
Thinking about taking medication by myself (yes) | 90% | 80% | 0.27 |
Forgetting medication (yes) | 52% | 80% | 0.01* |
Making appointments independently (yes) | 86% | 42% | < 0.01* |
Transfer discussed on time (yes) | 75% | 79% | 0.78 |
Education negatively influenced by the disease? | 0.76 | ||
• No | • 30% | • 29% | |
• Repeating a class | • 23% | • 19% | |
• Lower level | • 12% | • 12% | |
• More absenteeism | • 19% | • 29% | |
• Other | • 15% | • 12% | |
Taking the disease into account at choice for vocation (yes) | 59% | 42% | 0.13 |
Restriction in career options by the disease (yes) | 48% | 25% | 0.96 |