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Table 1 Demographic information of patients represented by respondents to the patient and family survey

From: Comparing the importance of quality measurement themes in juvenile idiopathic inflammatory myositis between patients and families and healthcare professionals

Characteristic All patients
(N = 194)
Diagnosis
 Juvenile dermatomyositis, N (%) 189 (97)
 Juvenile polymyositis, N (%) 5 (3)
Respondenta
 Parent, N (%) 168 (87)
 Grandparent, N (%) 10 (5)
 Aunt/Uncle, N (%) 2 (1)
Female, N (%) 140 (72)
Ethnicity, N (%)
 Caucasian/White 150 (77)
 Hispanic/Latino 10 (5)
 African American/Black 11 (6)
 Asian/Pacific Islander 2 (1)
 American Indian/Alaskan Native 1 (0.5)
 Multiple Ethnicity 18 (9)
 Prefer not to answer 1 (1)
Time to diagnosis (months): mean (range) 6.7 (1–40)
Functional disability when disease at worst
 Significant impact, N (%) 145 (75%)
 Intermediate impact, N (%) 24 (12%)
Functional disability in prior two weeks  
 Minimal or no impact, N (%) 131 (69%)
 Significant impact, N (%) 19 (10%)
  1. aTotal less than 100%: 14 (7%) of respondents skipped question