Table 2 Themes identified across the six domains in the semi-structured interview
THEME | Frequency (n = 17 interviews) |
|---|---|
DOMAIN 1: Impact of treatment | |
Negative emotional reactions to treatment | 10 |
Missing school for treatment | 7 |
Anxiety about improvement | 5 |
Avoidance | 5 |
Side Effects | 5 |
Anticipatory nausea | 4 |
Painful Injections | 4 |
Difficulty swallowing tablets | 3 |
DOMAIN 2: Complications | |
Cataract removal | 6 |
Poor vision/blurring | 6 |
Glaucoma surgery | 3 |
DOMAIN 3: Impact on School | |
Difficulties reading information | 9 |
Upset at missing lessons | 8 |
Teachers forgetting | 7 |
Anxiety about catching up with missed work | 5 |
Difficulties seeing the ball in PE | 4 |
Upset at missing friends/activities at school | 4 |
DOMAIN 4: Impact outside school | |
Needing adaptations in order to participate | 5 |
Not able to see bus numbers readily | 4 |
DOMAIN 5: Social Factors | |
Being excluded | 8 |
Not chosen as team member | 6 |
Bullying | 4 |
Self-exclusion | 2 |
DOMAIN 6: Emotional Reactions | |
Distress/sadness about illness | 11 |
Fear | 9 |
Anger | 8 |
Worry about deterioration | 7 |
Worry about going blind | 7 |
Worry about the future/careers | 6 |
Why me? | 2 |