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Comparative characteristic of quality of life with patients suffering from juvenile idiopathic arthritis (JIA), attending school and taught at home

Objective

To compare the quality of life with patients suffering from JIA, attending school and taught at home.

Material

Basing on data of 99 patients 14-17 old with JIA boys/girls - 27%/73%, 1- group of children attending school 62 (63%), 2 – 37 patients taught at home; among whom - 20 (group 2A) on medical indications; 17 (group 2B) at will of the patient and parents. 1st group (syst. variant-14%, poly-50%, oligo-20% , SA-16%), 2nd group - (syst-27%, poly-49%, oligo-11%., SA-13%), 2-A (syst-40%, poly-50%, oligo-5%, CA-5%), 2B- (syst-11%, poly-47%, oligo-18%. SA-24%).

Methods

Questionnaire: SF-36, EQ-5D, HAQ, CHAQ; Kettel, author's method of social activity, Spielberger-Khanin scale; Visual analogue scale (VAS) – assessment of pain, VAS – global evaluation of health, Well-Being Index (WHO-5)

Results

VAS of pain ( 23*, 35, 34, 40* mm; p=0,000).

SF-36.PF 1st group-77, 2nd group-54, 2A-55, 2B-56; RP- 1gr -62, 2 - 48, 2A - 50, 2B - 50); BP: 70, 47, 57, 37; p=0.07), GH: (57*,43, 52, 37*; p=0.018; VT: 64, 51, 60,42 p=0.014; SF: 76*, 59, 65, 55*; p=0.004; RE: 77*, 70, 22*, 61; p=0.015; MH: 69*, 61, 62, 40*; p=0.035 . * - the difference is statistically reliable.

EQ-5D: 1.5; 1.6; 1.5; 1.3; VAS – global evaluation of health (76 , 57, 52, 64 mm).

HAQ, CHAQ: 0.3* ; 0.9; 1.12*: 0.6.p=0.02

WHO-5 (Norm >13): (15.4; 13.5; 14.2; 13).

Regular communication with equals in age: 1st group -82%; 2nd group - 43%; 2A group - 40%; 2B group 45%

Attendance of cultural events at least once a month in the 1st group - 50%, in the 2nd group, 30%, 2A group - 20%, 2B group -36%.

Communication disorders: 1st group - 68%; 2nd group - 80%, 2A-77%, 2B-72%; fears: 26%, 43%, 46%, 54%. Family stress: 71%, 40%, 38%, 36%.

Conclusion

The quality of life was higher with children attending school and considerably lower with children groundlessly taught at home.

Author information

Correspondence to TA Shelepina.

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This article is published under license to BioMed Central Ltd. This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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Keywords

  • Public Health
  • Arthritis
  • Visual Analogue Scale
  • Analogue Scale
  • Social Activity