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Comparative characteristic of quality of life with patients suffering from juvenile idiopathic arthritis (JIA), attending school and taught at home
Pediatric Rheumatology volume 9, Article number: P106 (2011)
To compare the quality of life with patients suffering from JIA, attending school and taught at home.
Basing on data of 99 patients 14-17 old with JIA boys/girls - 27%/73%, 1- group of children attending school 62 (63%), 2 – 37 patients taught at home; among whom - 20 (group 2A) on medical indications; 17 (group 2B) at will of the patient and parents. 1st group (syst. variant-14%, poly-50%, oligo-20% , SA-16%), 2nd group - (syst-27%, poly-49%, oligo-11%., SA-13%), 2-A (syst-40%, poly-50%, oligo-5%, CA-5%), 2B- (syst-11%, poly-47%, oligo-18%. SA-24%).
Questionnaire: SF-36, EQ-5D, HAQ, CHAQ; Kettel, author's method of social activity, Spielberger-Khanin scale; Visual analogue scale (VAS) – assessment of pain, VAS – global evaluation of health, Well-Being Index (WHO-5)
VAS of pain ( 23*, 35, 34, 40* mm; p=0,000).
SF-36.PF 1st group-77, 2nd group-54, 2A-55, 2B-56; RP- 1gr -62, 2 - 48, 2A - 50, 2B - 50); BP: 70, 47, 57, 37; p=0.07), GH: (57*,43, 52, 37*; p=0.018; VT: 64, 51, 60,42 p=0.014; SF: 76*, 59, 65, 55*; p=0.004; RE: 77*, 70, 22*, 61; p=0.015; MH: 69*, 61, 62, 40*; p=0.035 . * - the difference is statistically reliable.
EQ-5D: 1.5; 1.6; 1.5; 1.3; VAS – global evaluation of health (76 , 57, 52, 64 mm).
HAQ, CHAQ: 0.3* ; 0.9; 1.12*: 0.6.p=0.02
WHO-5 (Norm >13): (15.4; 13.5; 14.2; 13).
Regular communication with equals in age: 1st group -82%; 2nd group - 43%; 2A group - 40%; 2B group 45%
Attendance of cultural events at least once a month in the 1st group - 50%, in the 2nd group, 30%, 2A group - 20%, 2B group -36%.
Communication disorders: 1st group - 68%; 2nd group - 80%, 2A-77%, 2B-72%; fears: 26%, 43%, 46%, 54%. Family stress: 71%, 40%, 38%, 36%.
The quality of life was higher with children attending school and considerably lower with children groundlessly taught at home.
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Shelepina, T., Stepanenko, N. & Fedorov, E. Comparative characteristic of quality of life with patients suffering from juvenile idiopathic arthritis (JIA), attending school and taught at home. Pediatr Rheumatol 9 (Suppl 1), P106 (2011). https://doi.org/10.1186/1546-0096-9-S1-P106
- Public Health
- Visual Analogue Scale
- Analogue Scale
- Social Activity