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Table 1 Demographic characteristics of pediatric myositis patients

From: Parents' perception of self-advocacy of children with myositis: an anonymous online survey

Characteristics Patients
N (%)*
  ≤ 15.0 years of age > 15.0 years of age
Currently living in   
United States 178 (86.0) 41(91.1)
Canada 29 (14.0) 4 (8.9)
Age (y.o.)   
< 3.0 10 (4.8)  
3.1-6.0 47 (22.7)  
6.1-9.0 57 (27.5)  
9.1-12.0 55 (26.6)  
12.1-15.0 38 (18.4)  
15.1-18.0   20 (44.4)
18.1-21.0   25 (55.6)
School grade   
Pre-K 27 (13.5)  
Kindergarten 18 (9.0)  
1st grade 25 (12.5)  
2nd grade 16 (8.0)  
3rd grade 22 (11.0)  
4th grade 13 (6.5)  
5th grade 24 (12.0)  
6th grade 13 (6.5)  
7th grade 12 (6.0)  
8th grade 21 (10.5)  
9th grade 8 (4.0) 1 (2.2)
10th grade 0 (0.0) 5 (11.1)
11th grade 1 (0.5) 8 (17.8)
12th grade   6 (13.3)
Beyond high school   25 (55.6)
Gender   
Female 141 (68.1) 35 (77.8)
Male 66 (31.9) 10 (22.2)
Age at the time of diagnosis of juvenile myositis (y.o.)   
< 3.0 39 (18.9) 0 (0.0)
3.1 - 6.0 89 (43.2) 2 (4.4)
6.1 - 9.0 40 (19.4) 6 (13.3)
9.1 - 12.0 31 (15.0) 10 (22.2)
12.1 - 15.0 7 (3.4) 8 (17.8)
15.1 - 18.0. 0 (0.0) 15 (33.3)
18.1 - 21.0 0 (0.0) 4 (8.9)
Diagnosis   
Juvenile dermatomyositis (JDM) 202 (97.6) 39 (86.7)
Juvenile polymyositis (JPM) 3 (1.4) 4 (8.9)
Other forms of juvenile myositis 2 (1.0) 2 (4.4)
  1. *N = 207 for patients ≤ 15.0 years of age; N = 45 for patients > 15.1 years of age.