Table 1 Demographic characteristics of pediatric myositis patients
From: Parents' perception of self-advocacy of children with myositis: an anonymous online survey
Characteristics | Patients N (%)* | |
|---|---|---|
|  | ≤ 15.0 years of age | > 15.0 years of age |
Currently living in | Â | Â |
United States | 178 (86.0) | 41(91.1) |
Canada | 29 (14.0) | 4 (8.9) |
Age (y.o.) | Â | Â |
< 3.0 | 10 (4.8) | Â |
3.1-6.0 | 47 (22.7) | Â |
6.1-9.0 | 57 (27.5) | Â |
9.1-12.0 | 55 (26.6) | Â |
12.1-15.0 | 38 (18.4) | Â |
15.1-18.0 | Â | 20 (44.4) |
18.1-21.0 | Â | 25 (55.6) |
School grade | Â | Â |
Pre-K | 27 (13.5) | Â |
Kindergarten | 18 (9.0) | Â |
1st grade | 25 (12.5) | Â |
2nd grade | 16 (8.0) | Â |
3rd grade | 22 (11.0) | Â |
4th grade | 13 (6.5) | Â |
5th grade | 24 (12.0) | Â |
6th grade | 13 (6.5) | Â |
7th grade | 12 (6.0) | Â |
8th grade | 21 (10.5) | Â |
9th grade | 8 (4.0) | 1 (2.2) |
10th grade | 0 (0.0) | 5 (11.1) |
11th grade | 1 (0.5) | 8 (17.8) |
12th grade | Â | 6 (13.3) |
Beyond high school | Â | 25 (55.6) |
Gender | Â | Â |
Female | 141 (68.1) | 35 (77.8) |
Male | 66 (31.9) | 10 (22.2) |
Age at the time of diagnosis of juvenile myositis (y.o.) | Â | Â |
< 3.0 | 39 (18.9) | 0 (0.0) |
3.1 - 6.0 | 89 (43.2) | 2 (4.4) |
6.1 - 9.0 | 40 (19.4) | 6 (13.3) |
9.1 - 12.0 | 31 (15.0) | 10 (22.2) |
12.1 - 15.0 | 7 (3.4) | 8 (17.8) |
15.1 - 18.0. | 0 (0.0) | 15 (33.3) |
18.1 - 21.0 | 0 (0.0) | 4 (8.9) |
Diagnosis | Â | Â |
Juvenile dermatomyositis (JDM) | 202 (97.6) | 39 (86.7) |
Juvenile polymyositis (JPM) | 3 (1.4) | 4 (8.9) |
Other forms of juvenile myositis | 2 (1.0) | 2 (4.4) |