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  • Poster presentation
  • Open Access

Update of the japanese national registry of pediatric rheumatic disease

  • 1,
  • 2,
  • 3 and
Pediatric Rheumatology201412 (Suppl 1) :P294

https://doi.org/10.1186/1546-0096-12-S1-P294

  • Published:

Keywords

  • Systemic Lupus Erythematosus
  • Vasculitis
  • Juvenile Idiopathic Arthritis
  • Fibromyalgia
  • Rheumatic Disease

Introduction

We, Pediatric Rheumatology Association of Japan (PRAJ), have set up new online national registry of pediatric rheumatic diseases.

Objectives

We report the first several months of enrollment to PRICURE (Pediatric Rheumatology International Collaboration Unit Registry).

Methods

Professor Shuji TAKEI, the former chairman of PRAJ had ordered his working group to set up a new registry system in 2012. Ethical issues about the registry in which we use clinical information were discussed by ethics committee of PRAJ and it had been approved in 2013. We started to collected basic information (e.g. name of rheumatic disease, age of onset, sex, clinical course) and further information (e.g. clinical symptoms, laboratory examination abnormalities, radiological examination abnormalities, treatment, complications) by web-based way in spring 2014.

Results

In the end of May 2014, 394 cases had been registered in the PRICURE. The number of cases of each diseases are as follow, Juvenile Idiopathic Arthritis 174, Systemic Lupus Erythematosus 65, Juvenile Dermatomyositis 43, Sjogren syndrome 14, Mixed Connective Tissue Disease 29, Systemic Sclerosis 12, Behcet’s Disease 8, Vasculitis 16, Autoinflammatory Syndromes 1, Fibromyalgia 38.

Conclusion

We hope that this registry contribute to the development of clinical research in the field of pediatric rheumatology.

Disclosure of interest

None declared

Authors’ Affiliations

(1)
Immuno-Rheumatology Center, St. Luke's International Hospital, Tokyo, Japan
(2)
Pediatrics, Kagoshima University, Kagoshima, Japan
(3)
Dpartment of Immunology and Infectious Diseases, Kanagawa Children's Medical Center, Yokohama, Japan

Copyright

© Yamagchi et al; licensee BioMed Central Ltd. 2014

This article is published under license to BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

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