Skip to content

Advertisement

  • Poster presentation
  • Open Access

PReS-FINAL-2067: How does the self-experienced HRQOL work for children with JIA - juvenile idiopathic arthritis in Stockholm?

  • K Berggren1
Pediatric Rheumatology201311(Suppl 2):P79

https://doi.org/10.1186/1546-0096-11-S2-P79

Published: 5 December 2013

Keywords

ArthritisChildhood HealthHealth Related QualityPhysical FunctionJuvenile Idiopathic Arthritis

Introduction

The aim of this study was to examine how children/teenagers with JIA - Juvenile Idiopathic Arthritis and its subgroups perceived their HRQOL - Health related quality of Life and to see if there were any correlation between HRQOL, self-rated ability of ADL and the amounts of inflamed joints.

Objectives

The subjects were 50 children/teenagers, 8-18 years (mean 13,7), 37 girls and 13 boys. 26/50 with Juvenile Polyarthritis, and 30/50 was treated with biological drugs.

Methods

ADL was measured with CHAQ - Childhood Health Assessment Questionnaire. The amount of joints was assessed by doctors. The HRQOL-instrument used was Disabkids, both the Generic version and the Arthritis version. The Generic version contains 37 questions and the Arthritis version 15 questions.

Results

Compared to other children with a chronic disease, the HRQOL estimates of the studied group is lower. The study showed a moderate correlation (r = -0.43 - -0.70) between CHAQ and 6 of the subgroups in Disabkids generic and in 1 of 2 subgroups in arthritis - Impact. CHAQ correlated to physical functions but also to mental and social functions. Only a mild correlation was seen between the doctors assessment of active joints (r = 0.31). The participants considered that the questions were important; easy to answer and took < 20 minutes.

Conclusion

The conclusion is that Disabkids can be used as a complement to other data collection for children with JIA.

Disclosure of interest

None declared.

Authors’ Affiliations

(1)
Astrid Lindgren Childrens Hospital, Karolinska University Hospital, Stockholm, Sweden

Copyright

© Berggren; licensee BioMed Central Ltd. 2013

This article is published under license to BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

Advertisement