Table 2 The rate of agreement among participants on the age at which the transition starts, transfer of care, readiness, and completion of the transition

Preparation of the transition process should start at 16–18 years old

64.6%

at 14–16 years old

31.2%

at 12–14 years old

4.2%

The first talk with the patient about the transition should be made at 12–14 years old.

62.5%

The transition program planning should start between 16 and 18 years.

95.8%

The transition visits should be made between 18 and 20 years.

60%

The transition process should be completed between 20–24 years.

52.7%

Statements for the transition readiness

 The timing of all transition steps until the age of 18 should be cleared during the transition planning step.

54.2%

 Parents’ new changing roles in the transition should be discussed.

75%

 The patient should be encouraged to answer questions about their illness, treatment, pain, education, and activities during visits after the age of 12.

70%

Statements for the transfer of care

 During the transfer visit, the logbook of the transition period and the epicrisis should be submitted to the adult rheumatology department.

95.8%

 The second visit should be made together with pediatric and adult rheumatologists in the adult rheumatology outpatient clinic.

75.1%

 The feedback of parents or patients on adult rheumatology care should be taken by pediatric rheumatology at the first or second transfer visit.

87.5%

 To ensure that the patient continues with adult rheumatology care until the age of 24, they should be seen annually in the pediatric rheumatology clinic after the transfer.

16.1%

Statements for the transition completion

 The last visit should only be conducted in the adult rheumatology clinic.

43.8%

 Make sure that the patient schedules follow-up appointments before concluding the transition process.

75%

 The patient should be seen alone in the visits after the transfer visit.^a

43.8%