Table 1 The barriers experienced by participants in the transition process
The barriers experienced in the transition | Response percentage |
|---|---|
The reasons for the inability to generate the transition program in centers (n=27) | |
Lack of an adult rheumatology clinic in the center | 51.9% |
Lack of time | 40.7% |
Social insurance-related appointment and registration problems | 29.6% |
Financial inadequacy | 11.1% |
The reasons for not deciding on timing transition steps with caregivers (n=37) | |
Lack of time | 64.9% |
Negative attitudes of patients and parents about this issue | 51.4% |
The existence of a transitional program that is not suitable for this subject | 24.3% |
The reasons for the inability to choose a transfer center in cooperation between patients, parents and clinicians (n=18) | |
Transferring by pediatric rheumatologists only to adult rheumatologists in their centers | 55.6% |
Parents prefer an adult rheumatology center that aligns with their own conditions | 33.3% |
Transferring to a specific adult rheumatology center not allowed by the national health appointment system | 27.8% |