Table 24 (abstract P273). Patient Characteristics, education, work participation
From: Proceedings of the 23rd Paediatric Rheumatology European Society Congress: part two
cSLE n = 106 | SLE n = 38 | p* | ||
|---|---|---|---|---|
Female | 93% | 95% | ||
Ethnicity | ||||
White | 71% | 71% | ||
Non White | 29% | 29% | ||
Age at study visit (median (range)) | 33 (18 – 65) | 39 (25 – 76) | 0.001 | |
Age at diagnosis, yrs (median (range)) | 14 (4 – 17) | 28 (18 – 69) | 0.000 | |
Disease duration, yrs (median (range)) | 20 (1 – 55) | 11 (1 – 34) | 0.000 | |
Current SLEDAI-2 K score (median (range)) | 4 (0 – 14) | 4 (0 – 10) | ||
SDI-score (median (range)) | 1 (0 – 8) | 1 (0 – 7) | ||
Patients with SLICC-DI ≥ 1 | 61% (65/106) | 58% (22/38) | ||
Course of education negatively affected due to SLE | 86% (91/106) | 37% (14/38) | 0.000 | |
Choice of education negatively affected due to SLE | 60% (63/106) | 26% (10/38) | 0.001 | |
Choice of career negatively affected due to SLE | 58% (62/106) | 41% (14/38) | ||
Student | 26% (27/106) | 0% (0/38) | ||
Work status (non-students) | Dutch norm | n = 79 | n = 38 | |
Full-time % | 23% | 17% (13/79) | 13% (5/38) | |
Part-time % | 69% | 41% (33/79) | 42% (16/38) | |
Unemployed % | 8% | 41% (33/79) | 45% (17/38) | |
Reduced working hours, (partially) due to SLE | 16% (13/79) | 16% (6/38) | ||
Quit working, (partially) due to SLE | 27% (21/79) | 26% (10/38) | ||
Never worked, (partially) due to SLE | 4% (3/79) | 0% | ||
Work disabled (fully and partially) | 53 % (42/79) | 32% (12/38) | 0.028 | |
SLICC-DI ≥ 1 | 83% (35/42) | 67% (8/12) | ||