Table 4 Working with families to make a decision
From: Understanding treatment decision making in juvenile idiopathic arthritis: a qualitative assessment
Sub-themes | Supporting quotations |
|---|---|
Information Delivery | “Some people come and as soon as they hear a diagnosis, they can’t comprehend anything beyond that for that visit and then some, the more information you give them the less anxious they are in those kinds of things.” Clinician 8 |
“I give them data. I show them sheets that have summarized those risks.” Clinician 9 | |
“…some families deal better when you speak in more concrete terms versus other families that, you know, may be more well educated.” Clinician 2 | |
Parents’ Fears | “I find it’s harder to implement the injection therapies when the parents are afraid of giving the shot than when the child is afraid of getting the shot.” Clinician 11 |
“And then also, when you talk about immunosuppressant medications and maybe they’re worried about well what’s going to have an effect the rest of their lives.” Clinician 2 | |
“They might have apprehensions or things like that regarding certain or some of the drugs that we use so that can be inherent or an issue with us getting the medications that we would prefer a patient to be on…” Clinician 3 | |
Giving recommendations | “Patients aren’t always amendable to what we recommended.” Clinician 3 |
“In terms of the type of biologics, I generally recommend etanercept and that is just because we’ve used it a long time, there is data out there, longer sort of term data.” Clinician 13 | |
“And a lot of times, families say, you know, will ask what would you do if it were your child. So, I always say it’s very hard for me to put myself in their shoes but I tell them what I think I would choose if they ask that.” Clinician 11 |