Table 3 Diagnostic and treatment cohort characteristics
Total (n = 69) N (%) | Localized (n = 38) N (%) | Systemic (n = 31) N (%) | |
|---|---|---|---|
Healthcare provider(s) seen before diagnosis | |||
Primary care provider only | 23 (33.3%) | 8 (21.1%) | 15 (48.4%) |
Dentist only | 4 (5.8%) | 1 (2.6%) | 3 (9.7%) |
Dermatology only | 12 (17.4%) | 12 (31.6%) | 0 |
Multiple providers including primary care, dermatology, dentist, and other specialists | 30 (43.5%) | 17 (44.7%) | 13 (41.9%) |
Healthcare provider who made diagnosis | |||
Primary Care Provider | 6 (8.7%) | 2 (5.3%) | 4 (12.9%) |
Dermatology | 24 (34.8%) | 24 (63.2%) | 0 |
Rheumatology | 35 (50.7%) | 12 (31.6%) | 23 (74.2%) |
Other | 4 (5.8%) | 0 | 4 (12.9%) |
How much time passed between bringing your child to medical attention and a diagnosis? | |||
Less than 1 month | 14 (20.2%) | 5 (13.2%) | 9 (29.0%) |
Between 1 and 3 months | 16 (23.2%) | 9 (23.7%) | 7 (22.6%) |
Between 3 and 6 months | 10 (14.5%) | 5 (13.2%) | 5 (16.1%) |
Between 6 and 12 months | 10 (14.5%) | 6 (15.8%) | 4 (12.9%) |
Between 1 and 2 years | 9 (13.0%) | 8 (21.1%) | 1 (3.2%) |
Between 2 and 4 years | 5 (7.2%) | 2 (5.3%) | 3 (9.7%) |
More than 4 years | 5 (7.2%) | 3 (7.9%) | 2 (6.5%) |
How much time passed between initial symptoms and initiation of systemic medication(s)? | |||
Less than 3 months | 16 (23.2%) | 9 (23.7%) | 7 (22.6%) |
Between 3 and 6 months | 15 (21.7%) | 6 (15.8%) | 9 (29.0%) |
Between 6 and 12 months | 9 (13.0%) | 4 (10.5%) | 5 (16.1%) |
Between 1 and 2 years | 10 (14.5%) | 8 (21.1%) | 2 (6.5%) |
Between 2 and 4 years | 11 (15.9%) | 6 (15.8%) | 5 (16.1%) |
More than 4 years | 4 (5.8%) | 2 (5.3%) | 2 (6.5%) |
Not applicable | 4 (5.8%) | 3 (7.9%) | 1 (3.2%) |