Table 5 Documentation frequency of access to care KPIs
From: Evaluating key performance indicators of the process of care in juvenile idiopathic arthritis
KPI | N (%) |
|---|---|
Access to Care KPIs | |
Waiting times for rheumatologist consultation for patients with new onset JIA | |
Number of patients with a qualitative or quantitative documentation for waiting times [n = 140] | 24 (17%) |
Number of patients with an eligible date of referral reported [n = 24]a | 18 (75%) |
Number of patients that met benchmark of time from referral to first visit in days, [n = 18]b | 14 (78%) |
50th percentile in days, [n = 18] | 24 |
Non-systemic JIA patients in days, [n = 16] | 24 |
90th percentile in days, [n = 18] | 46 |
Non-systemic JIA patients in days, [n = 16] | 45 |
Patients newly diagnosed with JIA with at least 1 visit to a pediatric rheumatologist in the first year of diagnosis | |
Number of patients with new onset JIA (incident JIA) with at least one visit to a pediatric rheumatologist in the first year of diagnosis [n = 137] | 137 (100%) |
Patients seen in yearly follow-up by a pediatric rheumatologist | |
Number of patients with JIA seen by their pediatric rheumatologist at least once every year over their follow-up period [n = 137] | 105 (77%) |
12 to 24 months after diagnosis [n = 128] | 123 (96%) |
24 to 36 months after diagnosis [n = 89] | 74 (83%) |
36 to 48 months after diagnosis [n = 36] | 24 (67%) |