Evaluating key performance indicators of the process of care in juvenile idiopathic arthritis

Table 3 Documentation of UCAN CURE KPIs in SCM and the administrative databases

KPI	Documented^a in at least one visit for each patient, n (%)
Measurement of Patient Outcomes KPIs
1. Rheumatological Joint Assessment in SCM	140 (100%)
2. Physician's Global Assessment of Disease Activity in SCM	66 (47%)
3. Assessment of Functional Ability	56 (40%)
Assessment of Functional Ability using CHAQ in SCM	56 (40%)
Other Assessment of Functional Ability in SCM^b	0
4. Composite disease activity measurement	58 (41%)
All Components of cJADAS present in SCM	58 (41%)
cJADAS in SCM^c	0
5. Assessment of arthritis-related pain in SCM	140 (100%)
Access to Care KPIs
6. Waiting time between referral date and first visit in SCM	24 (17%)
7. Presence of visit dates for first year of diagnosis in SCM [n = 137]^d	137 (100%)
8. Presence of visit dates for follow-up visits in SCM [n = 137]^d	137 (100%)
Safety KPIs
9. Tuberculosis Screening [n = 56]^e	54 (96%)
Tuberculosis Screening in SCM [n = 56]^e	53 (95%)
Tuberculosis Screening in Consolidated Laboratory Repository [n = 56]^e	5 (9%)
Tuberculosis Screening in Practitioner Claims [n = 56]^e	18 (32%)
Tuberculosis Screening in NACRS [n = 56]^e	4 (7%)
10. Laboratory Monitoring for DMARDs^f [n = 102]^g	102 (100%)
Labs Ordered in SCM [n = 99]^h	91 (92%)
Lab Results in SCM [n = 99]^h	91 (92%)
Laboratory Tests in Consolidated Laboratory Repository [n = 102]^g	102 (100%)

^a ‘Documented’ – means data required for each KPI is found in at least one visit in the entire JIA cohort. If the data were found to be documented, this is shown in the table as ‘Yes’. If data were not found, this is shown in the table as ‘No’. If the KPI is not relevant to be reported separately for the respective visit type, it is shown in the table as N/A
^bThe CHAQ was the only assessment of functional ability found
^cThe cJADA score was never explicitly found, only the components required to calculate the cJADAS (joint count, physician’s global assessment, parent/patient assessment of well-being)
^dn = 137 because 3 patients did not have a follow-up visit after diagnosis date
^en = 56 because this is only applicable to those prescribed biologics. Documentation of tuberculosis screening in any of the data sources used. One patient’s screening was not documented in SCM but was documented in the Consolidated Laboratory Repository
^fDisease modifying anti-rheumatic drugs (DMARDs)
^gn = 102 because this is only applicable to those prescribed the DMARDs methotrexate and leflunomide
^hn = 99 because this is only applicable to patients who had a visit after being prescribed the DMARDs methotrexate and leflunomide

ISSN: 1546-0096