Table 1 Sociodemographic and clinical characteristics of the study sample
Parameters | PARQ | CARQ |
|---|---|---|
N | 481 | 465 |
Female, N (%) | 337 (70.1) | 324 (69.7) |
Age at assessment, years | 10.1 ± 3.7 | 10.2 ± 3.7 |
Age ≤ 12 ys, N (%) | 352 (73.2) | 337 (72.5) |
Disease duration, years | 4.7 ± 0.8 | 4.7 ± 0.8 |
JIA categories, N (%) | ||
Systemic arthritis | 14 (2.9) | 12 (2.6) |
Oligoarthritis, extended | 71 (14.8) | 69 (14.8) |
Oligoarthritis, persistent | 163 (33.9) | 161 (34.6) |
RF- negative polyarthritis | 143 (29.7) | 135 (29.0) |
RF- positive polyarthritis | 7 (1.5) | 6 (1.3) |
Enthesitis-related arthritis | 34 (7.1) | 34 (7.3) |
Psoriatic arthritis | 24 (5.0) | 24 (5.2) |
Undifferentiated arthritis | 25 (5.2) | 24 (5.2) |
Medication, N (%) | ||
NSAIDs | 94 (19.5) | 89 (19.1) |
Glucocorticoids, systemic | 18 (3.7) | 16 (3.4) |
DMARDs, total | 292 (60.7) | 278 (59.8) |
Methotrexate | 223 (46.4) | 213 (45.8) |
Other csDMARDs | 37 (7.7) | 37 (8.0) |
Etanercept | 61 (12.7) | 58 (12.5) |
Adalimumab | 48 (10.0) | 48 (10.3) |
Other bDMARDs | 27 (5.6) | 22 (4.7) |
Combination of bDMARD + MTX | 75 (15.6) | 73 (15.7) |
No DMARD therapy (last 6 months) | 186 (38.7) | 184 (39.6) |
Physician global assessment of disease activity (PhGA), NRS 0–10 | 0.7 ± 1.3 | 0.7 ± 1.3 |
PhGA = 0, N (%) | 272 (57.4) | 266 (58.1) |
cJADAS-10 (range 0–30) | 2.6 ± 3.4 | 2.5 ± 3.2 |
cJADAS-10 ≤ 1, N (%) | 237 (50.2) | 229 (50.2) |
Patient global overall-wellbeing (PGA), NRS 0–10 | 1.3 ± 1.8 | 1.3 ± 1.7 |
PGA = 0, N (%) | 185 (38.6) | 178 (38.4) |
Pain, NRS 0–10 | 1.0 ± 1.8 | 1.0 ± 1.8 |
Pain = 0, N (%) | 256 (53.4) | 247 (53.4) |
Functional status, CHAQ (0–3) | 0.2 ± 0.4 | 0.2 ± 0.4 |
CHAQ = 0, N (%) | 331 (69.4) | 320 (69.4) |
Health related quality of life (PedsQL 4.0 total score, 0–100) | 87.4 ± 13.8 | 89.7 ± 12.2 |
PedsQL 3.0 Rheumatology Module (Score 0–100) | ||
PedsQL pain and hurt | 86.4 ± 18.9 | 88.4 ± 18.5 |
PedsQL daily activities | 96.9 ± 9.2 | 97.2 ± 8.4 |
PedsQL treatment | 78.4 ± 21.9 | 81.2 ± 21.8 |
PedsQL worry | 88.2 ± 19.0 | 91.3 ± 16.3 |
PedsQL communication | 82.9 ± 24.3 | 85.2 ± 22.4 |
Socioeconomic status | ||
- low, N (%) | 217 (45.1) | 207 (44.5) |
- medium, N (%) | 156 (32.4) | 152 (32.7) |
- high, N (%) | 108 (22.5) | 106 (22.8) |