Table 2 Characteristics and time to access pediatric rheumatology center by juvenile idiopathic arthritis subtype

Age at diagnosis (years)

4.8 [2.5; 9.4]

3.3 [2.1; 5.2]

5.3 [2.9; 9.2]

11.1 [8.5; 12.4]

6.2 [3.2; 10.6]

10.2 [6.8; 11.5]

12.7 [11.8; 14.4]

Age at onset (years)

4.3 [2.1; 8.4]

2.7 [1.7; 4.8]

4.9 [2.5; 8.8]

9.1 [6.7; 11.7]

5.4 [2.8; 10.3]

9.1 [6.2; 10.9]

12.2 [9.9; 13.5]

Female sex

190 (76.0%)

104 (83.9%)

43 (76.8%)

12 (44.4%)

17 (73.9%)

7 (63.6%)

7 (77.8%)

Time between onset and first HCP (months)

0.0 [0.0; 0.7]

0.0 [0.0; 0.4]

0.1 [0.0; 0.7]

0.8 [0.0; 5.0]

0.0 [0.0; 0.3]

0.0 [0.0; 0.5]

0.0 [0.0; 0.5]

Time between first HCP and PR visit (months)

2.1 [1.0; 5.0]

2.1 [0.9; 4.6]

2.4 [1.2; 5.4]

4.0 [1.7; 8.0]

1.1 [0.3; 1.6]

2.1 [0.7; 9.0]

2.3 [1.2; 4.1]

Time to first PR visit (months)

2.4 [1.3; 6.9]

2.2 [1.3; 5.0]

3.0 [1.5; 6.9]

5.3 [2.0; 19.1]

1.4 [0.6; 3.8]

2.7 [1.2; 12.9]

2.9 [1.2; 6.0]

Time to first PR visit ≥ 10 weeks

132 (52.8%)

60 (48.4%)

33 (58.9%)

20 (74.1%)

7 (30.4%)

6 (54.5%)

6 (66.7%)

Time to first PR visit ≥ 6 months

67 (26.8%)

29 (23.4%)

15 (26.8%)

13 (48.1%)

4 (17.4%)

4 (36.4%)

2 (22.2%)

Time to first PR visit ≥ 12 months

36 (14.4%)

15 (12.1%)

5 (8.9%)

9 (33.3%)

2 (8.7%)

3 (27.3%)

2 (22.2%)

Number of HCPs met before the PRst

2 [1; 3]

2 [1; 3]

2 [2; 3]

2 [1; 3]

2 [2; 3]

2 [1; 2]

2 [1; 3]

Distance from patient’s dwelling place to the PR center (km)

37 [17; 82]

41 [15; 95]

37 [24; 61]

40 [19; 125]

45 [14; 70]

30 [15; 43]

23 [19; 31]