Health-related quality of life, continuity of care and patient satisfaction: long-term outcomes of former patients of the Tuebingen Transition Program (TTP) – a retrospective cohort study

Boeker, Luca Samuel; Kuemmerle-Deschner, Jasmin Beate; Saur, Sebastian Jonas; Klotsche, Jens; Erbis, Gabriele; Hansmann, Sandra

doi:10.1186/s12969-022-00776-6

Pediatric Rheumatology

Table 3 Significant effects on HR-QoL and patient satisfaction

a: Significant effects of patient satisfaction on HR-QoL
Dependent variable	Independent variable Satisfaction with...	beta-coefficient		p-value
EQ-5D-index	preparation for transfer	0.273		0.016
	how alcohol, nicotine and other drugs were addressed	0.476		0.005
	adult care in general	0.328		0.008
	waiting time for an appointment in adult care	0.287		0.020
	waiting time at an appointment in adult care	0.265		0.033
	interaction with the practitioner in adult care	0.282		0.023
EQ VAS	paediatric care in general	0.309		0.005
	preparation for transfer	0.427		< 0.001
	TTP in general	0.317		0.004
b: Various significant effects on HR-QoL
Dependent variable	Independent variable	beta-coefficient	Eta-coefficient	p-value
EQ-5D-index	PGA at time of transfer	−0.362		< 0.001
EQ-5D-index	Frequency of visits in adult care	− 0.335		0.002
Problems with mobility	PGA at time of transfer	0.306		0.004
Problems with mobility	Frequency of physical activity	−0.241		0.027
Problems with self-care	PGA at time of transfer	0.271		0.012
Problems with daily activities	Gender: male		0.276	0.011
	Frequency of visits in adult care	0.255		0.021
	Frequency of physical activity	−0.300		0.006
Pain/discomfort	PGA at time of transfer	0.286		0.008
Pain/discomfort	Frequency of visits in adult care	0.361		< 0.001
Anxiety/depression	Frequency of physical activity	−0.340		0.002
EQ VAS	Gender: male		0.234	0.033
	Frequency of physical activity	0.260		0.018
	Satisfaction with TTP in general	0.317		0.004
c: Various significant effects on patient satisfaction
Dependent variable Satisfaction with...	Independent variable	beta-coefficient		p-value
how alcohol, nicotine and other drugs were addressed	PGA at time of transfer	−0.582		< 0.001
how sexuality, contraception and family planning were addressed	PGA at time of transfer	−0.461		0.032
adult care in general	PGA at time of transfer	−0.273		0.025
prescription of further therapeutic options	PGA at time of transfer	−0.344		0.042
preparation for transfer	Time passed since transfer	−0.340		0.002

Legend:a) Each specific category of patient satisfaction presented above showed a significant correlation with HR-QoL in a linear regression analysis. A more positive beta coefficient means a stronger positive correlation. For manageability, we have limited the HR-QoL in this presentation to the EQ-5D index and the EQ VAS and left out the correlations between patient satisfaction and the five individual dimensions of the EQ-5D-5L
b) The EQ-5D index, the dimensions of the EQ-5D-5L and the EQ VAS showed significant correlations with various factors outside patient satisfaction. More positive beta coefficients signify a stronger positive correlation, while negative beta coefficients signal negative correlations. In cases where the beta coefficient is indicated, the indicated group had a significantly higher HR-QoL than the non-indicated opposite group
c) Patient satisfaction showed correlations with several factors listed above. More negative beta coefficients mean a stronger negative correlation. A higher ‘time since transfer’ means that participants attended the TTP longer ago than others, so their referral is further in the past

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ISSN: 1546-0096

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