Table 1 Demographics and clinical characteristics of the study cohort
Variable | Result |
|---|---|
Age in years, median (range) | 24.1 (19.1–40.5) |
18–24 years, n (%) | 49 (57.6) |
25–34 years, n (%) | 33 (38.8) |
35–44 years, n (%) | 3 (3.6) |
Time after transfer in years, median (range) | 6.0 (0.1–16.4) |
Number of days between last visit in TTP and first visit in adult care, median (range) | 128 (13–983) |
Gender, m:f, n (%) | 25:60 (29.4:70.6) |
Diagnosis at time of transfer, n (%) | |
JIA, overall | 60 (70.6) |
sJIA | 2 (2.4) |
OA extended | 3 (3.5) |
OA persistent | 10 (11.8) |
PA (RF-) | 23 (27.0) |
ERA | 14 (16.5) |
Psoriatic Arthritis | 5 (5.9) |
JIA, other | 3 (3.5) |
Autoinflammatory Disease | 6 (7.1) |
Systemic connective tissue disorders | 8 (9.4) |
Other | 11 (12.9) |
Medical therapy at time of transfer, n (%) | |
None | 23 (27.0) |
NSAID therapy (on demand) | 2 (2.4) |
NSAID therapy (daily regimen) | 5 (5.9) |
Basic therapy | 24 (28.2) |
Biologicals and JAK-inhibitors | 28 (32.9) |
Steroids | 2 (2.4) |
Missing | 1 (1.2) |
PGA at time of transfer | |
Mean (SD) | 1.01 (1.15) |
Median (range) | 1 (0–5) |
PGA = 0, n (%) | 33 (38.8) |
PGA = 1, n (%) | 32 (37.6) |
PGA = 2, n (%) | 12 (14.1) |
PGA = 3, n (%) | 4 (4.7) |
PGA = 4, n (%) | 2 (2.4) |
PGA = 5, n (%) | 2 (2.4) |
Utilization of the TTP in general | |
Age at first TTP visit in years, median (range) | 15.2 (11.2–18.7) |
Age at transfer in years, median (range) | 18.5 (17.0–20.7) |
Duration of TTP care in years, median (range) | 3.4 (0.4–7.1) |
Number of TTP visits, median (range) | 7.0 (2–18) |
Utilization of additional services of the TTP | |
Psycho-social services, n (%) | 38 (44.7) |
Clinic school, n (%) | 8 (9.4) |
Disease-related schooling opportunities, n (%) | 2 (2.4) |
Transition camp, n (%) | 4 (4.7) |
Physical therapy, n (%) | 28 (32.9) |
Level of school graduation, n (%) | |
Certificate of Secondary Education (Hauptschulabschluss) | 8 (9.4) |
General Certificate of Secondary Education (Mittlere Reife) | 11 (12.9) |
Advanced technical college entrance qualification (Fachhochschulreife) | 9 (10.6) |
General qualification for university entrance (Allgemeine Hochschulreife/Abitur) | 56 (65.9) |
Other | 1 (1.2) |
Completed vocational training, n (%) | |
Yes | 49 (57.6) |
No | 36 (42.4) |
Current employment, n (%) | |
Yes | 47 (55.3) |
No | 34 (40.0) |
Missing | 4 (4.7) |
Marital/family status, n (%) | |
Single | 74 (87.1) |
Married | 9 (10.6) |
Other | 2 (2.4) |
Domestic circumstances, n (%) | |
Living alone | 21 (24.7) |
At the parents’ home | 31 (36.5) |
Shared apartment | 11 (12.9) |
Living with the partner or family | 18 (21.2) |
Other | 3 (3.5) |
Missing | 1 (1.2) |