Fig. 3

Continuity of care. a Descriptive results of continuity of care. b Comparison of participants with and without continued care. Legend: a Descriptive results on continuity of care. The first graph shows the absolute numbers of participants with and without continued care after transfer and the reasons given for discontinuation of care (n = 83 due to two missing data). The following charts refer to the 65 patients who initially reported a successful transfer to adult rheumatology. These charts show the number of patients with a discontinuation of care after initial transfer to adult rheumatology, reasons for discontinuation of care, changes in diagnosis or medication after transfer and the current frequency of visits to adult rheumatology. a We ranked basic therapy as level 1, biologicals and JAK-inhibitors as level 2, and steroids as level 3. NSAIDs were ranked as level 0, whether they were prescribed to be taken daily or on demand. b Comparison of mean scores of relevant parameters between participants who continued to receive care after transfer and those who did not. Higher scores on the EQ VAS and lower EQ-5D-5L index scores indicate better health-related quality of life, lower PGA scores indicate less disease activity