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Table 2 Patient-reported disease features

From: Juvenile Dermatomyositis: what comes next? Long-term outcomes in childhood myositis from a patient perspective

Current disease features, self-reported and self-assesseda

(n = 83)b

Yes

No

Don’t know

‘Still have myositis’

49 (59)

20 (24.1)

14 (26.4)

Arthritis

28 (32.5)

49 (59.0)

6 (7.2)

Muscle Weakness

28 (32.5)

51 (61.4)

4 (4.8)

Skin Rash

21 (25.3)

53 (63.9)

9 (10.8)

Calcinosis (n = 82)

18 (21.9)

60 (73.2)

4 (4.9)

Lipodystrophy (n = 82)

6 (7.3)

67 (81.7)

9 (11.0)

Gastrointestinal involvement

4 (4.8)

75 (90.4)

4 (4.8)

Pulmonary Hypertension

2 (2.4)

79 (95.2)

2 (2.4)

Lung Involvement

1 (1.2)

82 (98.8)

-

  1. aNone reported cardiac or neurologic involvement
  2. bone respondent did not complete this questionnaire