Baseline Survey N = 77 | Two Year Follow-Up N = 20 | p-value | |
---|---|---|---|
Survey Question | Yes n (%) | Yes n (%) | |
In the last 12 months, did you talk with this provider without your parent or guardian in the room? | 46 (59.7%) | 12 (60.0%) | 0.50 |
In the last 12 months, did you and this provider talk about you being more in charge of your health? | 53 (68.8%) | 14 (70.0%) | 0.91 |
In the last 12 months, did you and this provider talk about remembering to take your medicines? | 37 (75.5%) | 8 (80.0%) | 0.49 |
In the last 12 months, did you and this provider talk about whether you may need to change to a new provider who treats mostly adults? | 31 (40.8%) | 8 (44.4%) | 0.68 |
In the last 12 months, did this provider ask if you had any questions or concerns about changing to a new provider who treats mostly adults? | 22 (71.0%) | 6 (75.0%) | 0.82 |
In the last 12 months, did you and this provider talk about a specific plan for changing to a new provider who treats mostly adults? | 14 (45.2%) | 5 (62.5%) | 0.22 |
Composite Transition Preparation Scores | Median [IQR] | Median [IQR] | |
Self-management (highest score possible 4) | 2 [1–3] | 2.5 [1–3] | 0.36 |
Medication counseling (highest score possible 3) | 2 [2,3] | 2.5 [2,3] | 0.58 |
Transfer planning (highest score possible 4) | 0 [0–2] | 0 [0–3] | 0.31 |
Total transition composite score (% of items answered yes) | 0.45 [0.27–0.55] | 0.52 [0.32–0.64] | 0.26 |