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Table 2 Change Over Time in Selected ADAPT Transition Preparation Measures

From: Longitudinal assessment of preparation for care transition among adolescents and young adults with rheumatologic disease: a single-center pilot study

 

Baseline Survey

N = 77

Two Year Follow-Up

N = 20

p-value

Survey Question

Yes

n (%)

Yes

n (%)

 

In the last 12 months, did you talk with this provider without your parent or guardian in the room?

46 (59.7%)

12 (60.0%)

0.50

In the last 12 months, did you and this provider talk about you being more in charge of your health?

53 (68.8%)

14 (70.0%)

0.91

In the last 12 months, did you and this provider talk about remembering to take your medicines?

37 (75.5%)

8 (80.0%)

0.49

In the last 12 months, did you and this provider talk about whether you may need to change to a new provider who treats mostly adults?

31 (40.8%)

8 (44.4%)

0.68

In the last 12 months, did this provider ask if you had any questions or concerns about changing to a new provider who treats mostly adults?

22 (71.0%)

6 (75.0%)

0.82

In the last 12 months, did you and this provider talk about a specific plan for changing to a new provider who treats mostly adults?

14 (45.2%)

5 (62.5%)

0.22

Composite Transition Preparation Scores

Median [IQR]

Median [IQR]

 

Self-management (highest score possible 4)

2 [1–3]

2.5 [1–3]

0.36

Medication counseling (highest score possible 3)

2 [2,3]

2.5 [2,3]

0.58

Transfer planning (highest score possible 4)

0 [0–2]

0 [0–3]

0.31

Total transition composite score (% of items answered yes)

0.45 [0.27–0.55]

0.52 [0.32–0.64]

0.26