Table 1 Survey Participant Characteristics by Survey Response

Race

 White

66 (86)

25 (81)

17 (85)

 Black or African American

8 (10)

2 (6)

0 (0)

 Asian

1 (1)

1 (3)

1 (5)

Ethnicity

 Not Hispanic, Latino, or Spanish Origin

72 (94)

29 (94)

19 (95)

 Puerto Rican

3 (4)

2 (6)

1 (5)

 Other Hispanic, Latino, or Spanish Origin

2 (3)

0 (0)

0 (0)

Female

64 (83)

29 (94)

18 (90)

Age (years)

19 [17–20]

20 [20–22]

20 [20–22]

Education

 9th grade

2 (3)

0 (0)

0 (0)

 10th grade

9 (12)

0 (0)

0 (0)

 11th grade

13 (17)

0 (0)

0 (0)

 12th grade, high school graduate, or GED

13 (17)

6 (19)

5 (25)

 Some college

33 (43)

14 (45)

10 (50)

 College graduate

7 (9)

11 (35)

5 (25)

Primary Rheumatologic Diagnosis*

Juvenile Idiopathic Arthritis

52 (68)

22 (71)

15 (75)

Uveitis (idiopathic)

2 (3)

1 (3)

0 (0)

Chronic Recurrent Multifocal Osteomyelitis

3 (4)

0 (0)

0 (0)

Systemic Lupus Erythematosus

8 (10)

3 (10)

1 (5)

Mixed Connective Tissue Disease

4 (5)

2 (6)

1 (5)

Sjögren’s

3 (4)

1 (3)

1 (5)

Juvenile dermatomyositis

3 (4)

2 (6)

2 (10)

Other vasculitis

4 (5)

0 (0)

0 (0)

Length of time seeing doctor

 At least 6 months but less than 1 year

2 (3)

0 (0)

0 (0)

 At least 1 year but less than 3 years

20 (26)

2 (6)

2 (10)

 At least 3 years but less than 5 years

19 (25)

11 (35)

5 (25)

 5 years or more

36 (47)

18 (58)

13 (65)

Frequency of visits in past year

 None

0 (0)

11 (35)

0 (0)

 1 time

17 (22)

7 (23)

7 (35)

 2 times

24 (31)

6 (19)

6 (30)

 3 times

17 (22)

4 (13)

4 (20)

 4 times

13 (17)

3 (10)

3 (15)

 5 or more times

6 (8)

0 (0)

0 (0)

Health status

 Excellent

10 (13)

3 (10)

1 (5)

 Very good

18 (23)

8 (26)

7 (35)

 Good

32 (42)

16 (52)

11 (55)

 Fair

15 (19)

4 (13)

1 (1)

 Poor

2 (3)

0 (0)

0 (0)