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Table 1 Baseline characteristics of patients and caregivers included in this analysis

From: Factors associated with care- and health-related quality of life of caregivers of children with juvenile idiopathic arthritis

 

Patients` characteristics (n = 250)

Caregivers’ characteristics (n = 250)

Age at baseline, median (IQR), years

12 (8–14)

42 (37–46)

Female, n (%)

155 (62%)

193 (77%)

Country, n (%)

 Canada

72 (29%)

 Netherlands

178 (71%)

JIA classification, n (%)

 Polyarticular JIA RF negative

56 (22%)

 Polyarticular JIA RF positive

12 (5%)

 Extended Oligoarticular JIA

20 (8%)

 Persistent Oligoarticular JIA

28 (11%)

 Oligoarticular JIA (not classified yet: < 6 months)

44 (18%)

 Enthesitis-related arthritis

34 (14%)

 Systemic JIA

16 (6%)

 Other subtypes

11 (4%)

 Missing

29 (12%)

Duration of disease at baseline, n (%)

 Diagnosis at the baseline visit or after

41 (16%)

 Up to 12 months before baseline visit

58 (23%)

 More than 12 months before baseline visit

109 (43%)

 Missing

45 (18%)

Disease status, n (%)

 Active

187 (75%)

 Inactive

51 (20%)

 Missing

12 (5%)

Active joint count

 Median (IQR)

2 (0–4)

 Missing, n (%)

11 (4%)

Treatment, n (%)

 DMARDs

76 (30%)

 Biologicals

62 (25%)

 Subcutaneous DMARDs or biologics

58 (23%)

Education, n (%)

 University

117 (47%)

 College

12 (5%)

 Technical/Trade school

72 (29%)

 Grade school

4 (2%)

 High school

25 (10%)

 Missing

19 (8%)

Employment, n (%)

 Yes

192 (77%)

 No

48 (19%)

 Missing

10 (4%)

Caregiver lives with spouse/partner, n (%)

 Yes

211 (84%)

 No

22 (9%)

 Missing

17 (7%)

Extra (paid) help (e.g., house-cleaner, baby-sitter), n (%)

 Yes

19 (7%)

 No

214 (85%)

 Missing

17 (7%)

Extra (unpaid) help from family, friends, or neighbours, n (%)

 Yes

39 (16%)

 No

194 (77%)

 Missing

17 (7%)

Adequacy of help at home, n (%)

 Have enough help

166 (66%)

 Could use more help sometimes/often

34 (14%)

 Do not have enough help

32 (13%)

 Missing

17 (7%)

  1. JIA Juvenile idiopathic arthritis, IQR Interquartile range, RF Rheumatoid factor, DMARDs Disease modifying anti-rheumatic drugs