Patients` characteristics (n = 250) | Caregivers’ characteristics (n = 250) | |
---|---|---|
Age at baseline, median (IQR), years | 12 (8–14) | 42 (37–46) |
Female, n (%) | 155 (62%) | 193 (77%) |
Country, n (%) | ||
Canada | 72 (29%) | – |
Netherlands | 178 (71%) | – |
JIA classification, n (%) | ||
Polyarticular JIA RF negative | 56 (22%) | – |
Polyarticular JIA RF positive | 12 (5%) | – |
Extended Oligoarticular JIA | 20 (8%) | – |
Persistent Oligoarticular JIA | 28 (11%) | – |
Oligoarticular JIA (not classified yet: < 6 months) | 44 (18%) | – |
Enthesitis-related arthritis | 34 (14%) | – |
Systemic JIA | 16 (6%) | – |
Other subtypes | 11 (4%) | – |
Missing | 29 (12%) | – |
Duration of disease at baseline, n (%) | ||
Diagnosis at the baseline visit or after | 41 (16%) | – |
Up to 12 months before baseline visit | 58 (23%) | – |
More than 12 months before baseline visit | 109 (43%) | – |
Missing | 45 (18%) | – |
Disease status, n (%) | ||
Active | 187 (75%) | – |
Inactive | 51 (20%) | – |
Missing | 12 (5%) | – |
Active joint count | ||
Median (IQR) | 2 (0–4) | – |
Missing, n (%) | 11 (4%) | – |
Treatment, n (%) | ||
DMARDs | 76 (30%) | – |
Biologicals | 62 (25%) | – |
Subcutaneous DMARDs or biologics | 58 (23%) | – |
Education, n (%) | ||
University | – | 117 (47%) |
College | – | 12 (5%) |
Technical/Trade school | – | 72 (29%) |
Grade school | – | 4 (2%) |
High school | – | 25 (10%) |
Missing | – | 19 (8%) |
Employment, n (%) | ||
Yes | – | 192 (77%) |
No | – | 48 (19%) |
Missing | – | 10 (4%) |
Caregiver lives with spouse/partner, n (%) | ||
Yes | – | 211 (84%) |
No | – | 22 (9%) |
Missing | – | 17 (7%) |
Extra (paid) help (e.g., house-cleaner, baby-sitter), n (%) | ||
Yes | – | 19 (7%) |
No | – | 214 (85%) |
Missing | – | 17 (7%) |
Extra (unpaid) help from family, friends, or neighbours, n (%) | ||
Yes | – | 39 (16%) |
No | – | 194 (77%) |
Missing | – | 17 (7%) |
Adequacy of help at home, n (%) | ||
Have enough help | – | 166 (66%) |
Could use more help sometimes/often | – | 34 (14%) |
Do not have enough help | – | 32 (13%) |
Missing | – | 17 (7%) |