Table 2 Transition program outcomes
Study | Active disease | Satisfaction | HRQoL | |||||
|---|---|---|---|---|---|---|---|---|
At transfer | At follow-up | Scale a | At follow-up | Scale a | At transfer | At follow-up | Scale a | |
Cole, 2015 [29] | Tr: 14/44 (31.8%) nTr: 17/28 (77.3%) | NR | NR | NR | NR | NR | NR | NR |
Jensen, 2015 [30] | NR | NR | NR | Tr: 42 (range 16—50) nTr: NR | 10-item questionnaire created by authors. Range between 5 (negative) and 50 (positive) | NR | NR | NR |
Van den Brink, 2019 [19] | Tr: 5/35 (14.3%) nTr: NA | NR | NR | Tr: < 5.5 0 (0%) 5.5–7 11 (31.4%) > 7 24 (68.6%) nTr: NA | Graded by the patients on a 10-point scale | NR | NR | NR |
Otto, 2019 [20] | Tr: 4/21 (19%) nTr: 5/24 (21%) | Tr: 1/21 4.8% nTr: 6/24 25% | NR | NR | NR | NR | NR | NR |
Sattoe, 2020 [31] | Tr: 13/56 (23.6%) nTr: 27/54 (50%) | Tr: 2/30 (6.9%) nTr: 6/24 25% | NR | Tr: 7.4 (SD 1.3) nTr: 6.8 (SD 1.2) | Graded by the patients on a 10-point scale | NR | Tr: 78.3 (SD 23.8) nTr: 77.6 (SD 15.4) | Paediatric Quality of Life Inventory Young Adult. Range between 0 and 100 (highest HRQoL) |
Shaw, 2006 McDonagh, 2007 | NR | NR | PGA, number of active and limited joints, VAS-global, VAS-pain | Tr: -0.3 (-3.5, 6.0) nTr: NA | Mind the Gap. Range between − 7 (most satisfied) and 7 (most unsatisfied) | Tr: 2.7 (IQR 1,6.8) nTr: NA | Tr: -0.3 (IQR -3.8, 5.6) nTr: NA | Juvenile Arthritis Quality of Life Questionnaire (JAQQ). Range between 1 to 7 (lower HRQoL) |
Hilderson, 2015 [24] | Tr: 10/23 (43.5%) nTr: 9/23 (39%) | NR | CHAD-QI | NR | NR | NR | NR | NR |
Walter, 2018 [32] | NR | NR | Number of active and painful joints, ESR | Tr: 7.5 (SD 1.9) / 74.5 (SD 12.1) nTr: 7.7 (SD 0.8) / 72 (SD 14.7) | Visual analogue scale (VAS) On your own feet (OYOF-TES) | NR | NR | NR |
Cramm, 2013 [26] | NR | NR | NR | Tr: 0.3 (0.9) nTr: NA | Mind the Gap. Range between − 7 (most satisfied) and 7 (most unsatisfied) | NR | Tr: Emotional 74.8 (SD 17.6) Physical 61.8 (SD 16.9) Social 76 (SD 16.6) nTr: NA | DISABKIDS condition-generic module questionnaire |
Testa, 2018 [27] | NR | NR | NR | NR | NR | NR | NR | NR |
Corsello, 2021 [28] | Tr: 20/82 (24.4%) nTr: NA | NR | NR | NR | NR | NR | Tr: 53.9 (SD 9.8) nTr: NA | SIBDQ |
Gray, 2019 [21] | Tr: 42/135 (31.1%) nTr: 4/18 (23.5%) | Tr: 24/135 (17.8%) nTr: 2/18 (11.7%) | PGA | NR | NR | NR | NR | NR |
Schmidt, 2015 [22] | NR | NR | NR | Tr: 4.04 (SD 0.92) nTr: NR | CHS-SUN self | NR | NR | EUROHIS QOL-8 WHOQOL-Bref DISABKIDS Chronic Generic Measure |
Schütz, 2019 [23] | NR | NR | NR | NR | NR | NR | Tr: 170 (SD 27) nTr: 158 (SD 39) | IBDQ |