Study | Country | Study type | Subjects included | Transition / No transition | Transition description | Setting | Diseases included | Age at transfer (years) | Transition staff | Program duration (months) | Follow-up (months) |
---|---|---|---|---|---|---|---|---|---|---|---|
Cole, 2015[29] | UK | Retrospective cohort | 128 | 44 / 28 | Joint consultations between adult and pediatric gastroenterologists starting at 15 years old | Inflammatory Bowel Disease unit | IBD | 16 or older | Pediatric and adult physician, nurse, others | NR | 38 (12–47) |
Jensen, 2015[30] | USA | Prospective Cohort | 236 | 219 / 26 | Assessment for transition awareness and readiness to start the process with social worker (coordinator). Specific workbooks were provided and established written transition goals that were followed and discussed between patients, parents and the transition coordinator. The transfer was done when the pediatric rheumatologist seemed appropriate | Pediatric Rheumatology Clinic | JIA | 16 or older | Social worker | Not standardized | 6–8 |
Van den Brink, 2019[19] | Netherlands | Prospective cohort | 35 | 35 / 0 | Two multidisciplinary teams (pediatric and adult) discussed all patients before starting. At least four visits per year with pediatric team and once a year with adult team. Transition was made at 18 years old | NR | IBD | 18 | Pediatric and adult physician, nurse, others | 13 (5–18) | 12 |
Otto, 2019[20] | Hungary | Retrospective cohort | 45 | 21 / 24 | Joint sessions between pediatric and adult experts every six months to evaluate families of 16 years old adolescents that would transfer at 18 years old | Pediatric Gastroenterology Outpatient Clinic | IBD | NR | Pediatric and adult physician, nurse | NR | NR |
Sattoe, 2020[31] | Netherlands | Cohort | 110 | 56 / 54 | A multidisciplinary team visited every three months patients aged 16 to 18 for three appointments, a fourth appointment was made with the adult care professional | Adult Gastroenterology Department | IBD | 11–17 | Pediatric and adult physician, nurse | 12 | 24–48 |
Shaw, 2006[25] | UK | Prospective cohort | 308 | 308 / 0 | Individualized Transition Plans (ITP) were created for young persons and their parents in terms of transition, health, home and school. Three steps were evaluated as early (11–13 years), middle (14–16 years) and late (17 years and over) adolescents. Every ITP was self-completed and reviewed at the clinic every 6 months | NR | JIA | NR | Nurse, Physiotherapist, others | 22 | NR |
McDonagh, 2007[9] | |||||||||||
Hilderson, 2015[24] | Belgium | Prospective cohort | 46 | 23 / 23 | Five-step program that started with two appointments with the transition coordinator that provided information and support to the patient and was available by telephone, a information day for adolescents and parents, an individualized transfer plan and the final transfer | Pediatric Rheumatology Department | JIA | 14–16 | Social worker | 16 | NR |
Walter, 2018[32] | Netherlands | Prospective cohort | 154 | 78 / 76 | ITP program started early at 12–14 years, the time of transfer is decided by the patient and physicians at 17–18 years old | Pediatric Rheumatology Department | JIA, SLE, others | NR | Pediatric and adult physician, nurse | NR | 36 |
Cramm, 2013[26] | Netherlands | Retrospective cohort | 115 | 31 / 69 | Multicentered effort. Every center used a combination of interventions: information leaflets and websites, checklist for transition, patient reported outcomes (QoL instruments), transition coordinator, transition clinic, structural consultations, group sessions | NR | Type I DM, JIA, NMD | 12–25 | Pediatric and adult staff | 12 | 12 |
Testa, 2018[27] | Italy | Retrospective cohort | 45 | 24 / 21 | One or two joint sessions between patient, family, pediatric and adult gastroenterologist | Pediatric and Adult Gastroenterology Department | IBD | NR | Pediatric and adult physicians | NR | 12 |
Corsello, 2021[28] | Italy | Prospective cohort | 106 | 43/ 63 | Two joint sessions with pediatric and adult gastroenterologists. The first session was to examine previous medical history and planning the time of transition. The second session was to give the patients the possibility to discuss about future plans and therapies in a more autonomous and conscious way | Pediatric Center | IBD | 19 | Pediatric and adult physicians | NR | 18 |
Gray, 2019[21] | USA | Retrospective cohort | 153 | 82/ 135 | Annual meeting with transition coordinator and families for 15–20 min that was followed by phone calls or e-mails three months later to follow up goals set during the meeting. Meetings started at 14 years old and transition readiness was assessed for transfer | Pediatric IBD Clinic | IBD | 14–18 | Social worker | NR | NR |
Schmidt, 2015[22] | Germany | Quasi experimental study | 325 | 53 / 46 | Group training workshops were offered two consecutive days for a minimum group of four adolescents. Consisted of eight modules each of 60–90 min duration | NR | Type 1 DM, CF, IBD | 15 or older | Psychologist and pediatrician | 2 days | 6 |
Schütz, 2019[23] | Germany | Retrospective cohort | 35 | 11 / 24 | Joint consultation at 18-year-old with pediatric and adult gastroenterologist without parents before the first visit at the adult clinic | Pediatrics Department | IBD | NR | Pediatric and adult physicians | NR | 24 |