Table 1 Recruitment Summary by Source and Reason Code for Cases and Controls
Source | Code | Controls | Cases | Total |
|---|---|---|---|---|
Pedi Rheum Clinic | Total from Source | 9 | 32 | 41 |
Enrolled | 6 | 13 | 19 | |
Lost to Follow-up | 3 | 14 | 17 | |
Screen Fail (4 age, 1 comorbidity) | - | 5 | 5 | |
Calling from Clinic Schedule | Total from Source | - | 30 | 30 |
Enrolled | - | 5 | 5 | |
Lost to F/U | - | 5 | 5 | |
Screen Fail (comorbidity) | - | 1 | 1 | |
Declined (2 unfamiliar with study team, 3 unknown or prefer not to say) | - | 5 | 5 | |
Unable to Contact | - | 14 | 14 | |
Study Team Referrals – Principal Investigator | Total from Source | 28 | - | 28 |
Enrolled | 14 | - | 14 | |
Lost to F/U | 4 | - | 4 | |
Screen Fail (age) | 1 | - | 1 | |
Declined (1 scheduling, 3 afraid of needles, 1 afraid of doctors, 4 unknown) | 9 | - | 9 | |
Study Team Referrals – Study Recruitment Team | Total from Source | 4 | 5 | 9 |
Enrolled | 1 | 1 | 2 | |
Lost to F/U | 1 | 4 | 5 | |
Screen Fail (recent surgery) | 1 | - | 1 | |
Declined (fear of blood draw) | 1 | - | 1 | |
Social Media (Facebook and Twitter) | Total from Source | 5 | - | 5 |
Lost to Follow Up | 5 | - | 5 | |
Total Referrals | 46 | 67 | 113 |