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Table 2 The themes presenting children, young adults and parents’ experiences regarding child participation in healthcare

From: How children with juvenile idiopathic arthritis view participation and communication in healthcare encounters: a qualitative study

Examples of codes

Sub-subtheme

Subtheme

Theme

Nervous about bad news

Stressful healthcare encounters

Distancing oneself from healthcare encounters

Feeling alienated or familiar with healthcare encounters

Do not understand

Feeling disregarded

Don’t want to worry parents

Withholding information

Know what to expect

Being a normal event in life

Being at ease with healthcare encounters

Come by yourself: dared to ask

Enabled by physical and mental space