Table 1 Demographic and clinical characteristics of pJIA patients enrolled in this CARRA Registry cohort
Characteristic | Total N = 1684 |
|---|---|
Sex | |
 Female | 1322 (79%) |
 Male | 362 (21%) |
 Age at diagnosis – Median (IQR) | 7.0 (3.0, 11.0) |
Race/Ethnicity | |
 White | 1246 (74%) |
 Asian | 53 (3.1%) |
 Black, African American, African, or Afro-Caribbean | 63 (3.7%) |
 Hispanic, Latino, or Spanish origin | 167 (9.9%) |
 Other | 130 (7.8%) |
 Prefer not to answer | 25 (1.5%) |
Household Income | |
  < $25,000 | 150 (8.9%) |
 $25,000-49,999 | 188 (11.2%) |
 $50,000-99,999 | 414 (24.5%) |
 $100,000+ | 483 (28.7%) |
 Prefer not to answer or missing | 449 (26.7%) |
Community Poverty Level | |
 Less than 20% | 1368 (81%) |
 Greater than or equal to 20% | 316 (19%) |
Parent/Guardian Education Level | |
 High school or less | 260 (15.4%) |
 College (1–4 year college, junior college, or technical school) | 656 (39%) |
 Graduate school | 289 (17.2%) |
 Prefer not to answer or missing | 479 (28.4%) |
Insurance | |
 Public | 430 (25.5%) |
 Private | 1123 (66.7%) |
 None/Other/Non-US/More than one | 131 (7.8%) |
Patient Reported Morning Stiffness | |
  < =15 min | 1114 (66.2%) |
  > 15 min | 438 (26%) |
 Missing | 132 (7.8%) |
 Baseline cJADAS | 7.5 (3.0, 12.0) [2] |
 Unknown | 641 |
 Baseline CHAQ | 0.25 (0.00, 0.87) [2] |
 Unknown | 130 |
IgM RF | |
 Positive | 309 (18%) |
 Negative | 1204 (71%) |
 Not performed | 171 (11%) |
Anti-CCP | |
 Positive | 252 (15%) |
 Negative | 786 (47%) |
 Not performed | 646 (38%) |