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Table 1 Patient characteristics (parent/guardian-reported at time of interview)

From: ‘Snakes & Ladders’: factors influencing access to appropriate care for children and young people with suspected juvenile idiopathic arthritis – a qualitative study

ID Age Gender JIA subtype Time to first seeking medical advice from symptom onset
(weeks)
Service symptoms first discussed in Contacts with primary care centres prior to first referral to secondary care Contacts with primary and secondary care centres prior to access to a PRh MDT Referred to PRh MDT by Time to first PRh MDT visit from symptom onset
(weeks)
1 3 F Systemic > 1 A&E 1 13 Paediatrics 22
2 12 M Oligo 1 GP 1 6 GP 364a
3 8 F Systemic > 1 GP 4 8 Paediatrics 9
5 7 M Poly 8 A&E 1 5 Orthopedics 4
6 1 M Oligo > 1 GP-Out of Hours 2 13 Paediatrics 4
7 4 F Poly 1 GP 1 5 Orthopedics 20
8 11 F Oligo 4 GP 1 5 Orthopedics 26
9 5 F Oligo > 1 A&E 1 4 Orthopedics 26
10 5 M Oligo 2 GP 1 7 GP 13
11 2 M Systemic > 1 GP-Out of Hours 4 8 Paediatrics 10
12 2 M Oligo 4 GP 1 13 Orthopedics 8
13 3 F Oligo 4 GP-Out of Hours 1 11 Paediatrics 9
14 6 F Oligo 10 Health Visitor 4 9 Unclear 26
15 6 F Oligo 5 Walk in Centre 1 4 Paediatrics 8
16 8 F Poly 6 GP 3 3 GP 30
17 12 M Poly 3 GP 2 2 GP 286a
18 6 M Poly 4 GP 2 2 GP 7
19 16 F Psoriatic 8 GP 1 2 Dermatology 52
20 4 M Poly > 1 A&E 2 17 GP 17
21 17 F Poly Unclear GP 1 10 GP 20
22 13 F Poly 14 GP 1 2 Rheumatology 22
23 11 F Psoriatic 1 GP 6 6 GP 13
24 6 F Poly 8 GP 4 5 Paediatrics 26
25 13 F Poly 10 GP 1 3 GP 26
26 13 F Poly Unclear GP 2 5 A&E 260a
27 12 M Oligo 1 GP 1 2 GP 6
28 9 M Oligo > 1 GP 8 9 Orthopedics 32
29 7 M Oligo > 1 A&E 3 4 Orthopedics 13
30 17 M Poly N/A Secondary
(Paediatrics)
N/A 3 Paediatrics 104
31 3 F Oligo 32 Health Visitor 10 16 A&E 52
32 5 F Oligo 1 GP 1 1 GP 4
33 5 F Poly 52 GP 4 12 Paediatric Immunology 104
34 3 F Psoriatic 4 GP 2 4 Paediatrics 16
35 11 F Poly N/A Dental N/A 10 Paediatrics 208
36 5 F Poly 4 GP 2 5 Paediatrics 22
37 5 M Poly 12 GP 3 8 Paediatrics 77
  1. aParticipants received diagnosis prior – Patient 2 at 16 weeks, Patient 17 at 10 weeks and Patient 26 at 130 weeks - but did not visit PRh MDT care until this time point