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Table 1 Patient characteristics (parent/guardian-reported at time of interview)

From: ‘Snakes & Ladders’: factors influencing access to appropriate care for children and young people with suspected juvenile idiopathic arthritis – a qualitative study

ID

Age

Gender

JIA subtype

Time to first seeking medical advice from symptom onset

(weeks)

Service symptoms first discussed in

Contacts with primary care centres prior to first referral to secondary care

Contacts with primary and secondary care centres prior to access to a PRh MDT

Referred to PRh MDT by

Time to first PRh MDT visit from symptom onset

(weeks)

1

3

F

Systemic

> 1

A&E

1

13

Paediatrics

22

2

12

M

Oligo

1

GP

1

6

GP

364a

3

8

F

Systemic

> 1

GP

4

8

Paediatrics

9

5

7

M

Poly

8

A&E

1

5

Orthopedics

4

6

1

M

Oligo

> 1

GP-Out of Hours

2

13

Paediatrics

4

7

4

F

Poly

1

GP

1

5

Orthopedics

20

8

11

F

Oligo

4

GP

1

5

Orthopedics

26

9

5

F

Oligo

> 1

A&E

1

4

Orthopedics

26

10

5

M

Oligo

2

GP

1

7

GP

13

11

2

M

Systemic

> 1

GP-Out of Hours

4

8

Paediatrics

10

12

2

M

Oligo

4

GP

1

13

Orthopedics

8

13

3

F

Oligo

4

GP-Out of Hours

1

11

Paediatrics

9

14

6

F

Oligo

10

Health Visitor

4

9

Unclear

26

15

6

F

Oligo

5

Walk in Centre

1

4

Paediatrics

8

16

8

F

Poly

6

GP

3

3

GP

30

17

12

M

Poly

3

GP

2

2

GP

286a

18

6

M

Poly

4

GP

2

2

GP

7

19

16

F

Psoriatic

8

GP

1

2

Dermatology

52

20

4

M

Poly

> 1

A&E

2

17

GP

17

21

17

F

Poly

Unclear

GP

1

10

GP

20

22

13

F

Poly

14

GP

1

2

Rheumatology

22

23

11

F

Psoriatic

1

GP

6

6

GP

13

24

6

F

Poly

8

GP

4

5

Paediatrics

26

25

13

F

Poly

10

GP

1

3

GP

26

26

13

F

Poly

Unclear

GP

2

5

A&E

260a

27

12

M

Oligo

1

GP

1

2

GP

6

28

9

M

Oligo

> 1

GP

8

9

Orthopedics

32

29

7

M

Oligo

> 1

A&E

3

4

Orthopedics

13

30

17

M

Poly

N/A

Secondary

(Paediatrics)

N/A

3

Paediatrics

104

31

3

F

Oligo

32

Health Visitor

10

16

A&E

52

32

5

F

Oligo

1

GP

1

1

GP

4

33

5

F

Poly

52

GP

4

12

Paediatric Immunology

104

34

3

F

Psoriatic

4

GP

2

4

Paediatrics

16

35

11

F

Poly

N/A

Dental

N/A

10

Paediatrics

208

36

5

F

Poly

4

GP

2

5

Paediatrics

22

37

5

M

Poly

12

GP

3

8

Paediatrics

77

  1. aParticipants received diagnosis prior – Patient 2 at 16 weeks, Patient 17 at 10 weeks and Patient 26 at 130 weeks - but did not visit PRh MDT care until this time point