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Table 1 Clinical characteristics of the Nordic JIA study population

From: Fatigue in young adults with juvenile idiopathic arthritis 18 years after disease onset: data from the prospective Nordic JIA cohort

Characteristics

Total no. assessed

Values

Female sex, no. (%)

377

271 (72)

Age at disease onset, years, median (IQR)

377

5.6 (2.6–9.7)

Age at 18-year follow-up, years, median (IQR)

377

23.3 (20.2–27.1)

Disease duration at 18-year follow-up, years, median (IQR)

375

17.5 (16.8–18.3)

Oligoarticular JIA at onset, no. (%)

377

201 (53)

Oligoarticulara JIA at 18-year follow-up, no. (%)

377

175 (46)

VAS pain at 18-year follow-up, mean (±SD)

370

1.9 (±2.4)

SF-36 PCS at 18-year follow-up, mean (±SD)

377

51.5 (±9.7)

SF-36 MCS at 18-year follow-up, mean (±SD)

377

49.1 (±11.3)

HAQ at 18-year follow-up, mean (±SD)

370

0.2 (±0.4)

Not in remissionb at 18-year follow-up (visits), no. (%)

308

196 (63)

Not in remissionb at 18-year follow-up (visits/telephonec), no. (%)

369

215 (58)

DMARDs and/or biologics ongoing at 18-year follow-up, no. (%)

377

118 (31)

DMARDs and/or biologics ever during disease course, no. (%)

377

239 (63)

  1. JIA juvenile idiopathic arthritis, no. numbers, IQR interquartile range, 1st-3rd, SD standard deviation, VAS pain self-reported pain measured on a 21-numbered circle visual analogue scale (0 = no pain, 10 = maximum pain), SF-36 Short-form 36 Health Status Questionnaire, 0–100 (< 40 poor health), PCS physical component summary, MCS mental component summary, HAQ Health Assessment Questionnaire, 0–3 (0 = lowest, 3 = highest), DMARDs disease-modifying anti-rheumatic drugs, biologics biologic drugs
  2. aPersistent (no. =98) and extended (no. =77) oligoarticular disease
  3. bNot in remission off medication according to the definition by Wallace et al.
  4. c61 participated only in a telephone interview