Drug effects | Child’s quotation | Parent’s quotation |
---|---|---|
Positive effect | “The medication is very helpful; I’m less stiff, no pain, I’m able to do gymnastics and play handball” (12-year-old child, II) | “I’ve got a brand new girl! It happened fast, she is very happy and fresh. She felt useless (before). “(Parent of 12-year-old child, II) |
Uncertain effect and side effects | “More energy, but not as much as expected. I was nauseous and dizzy” (14-year-old child, II) | “He was better in the body, could perform more, but was nauseous and had a headache” (Parent of 14-year-old child, II) |
Effect and side effects | “No” (9-year-old child, II) (she had side effects of steroids) | “The results from blood samples and MR are positive. She is much stronger, she couldn’t keep her head straight” (Parent of 9-year-old child, II) |
Less effect than expected | “I have had a different effect on different drugs. When having the good effect I could be with friends, join birthday parties and so on ….” (15-year-old child, II) | “It was easier when she was younger. It has been hard to find medication for her as an adolescent. She had a period where she didn’t want to take the injections – she had lost the faith in the medication.” (Parent of 15-year-old child, II) |