Skip to main content

Table 1 Content from the individual- and focus group interview guides with children

From: I don’t want to think about it: a qualitative study of children (6–18 years) with rheumatic diseases and parents’ experiences with regular needle injections at home

  Individual interviews with children Focus groups with children
Introduction Establish contact and tell about the study
Talk about everyday life, something the child is interested in
Offer the child to draw, write or something to puzzle during the interview
Establish contact and tell about the study
Introduce each other (playing a game)
Agree on some house rules:
 • What being said in the room is kept there, only the researchers are allowed to listen to the recordings
 • Don’t speak at the same time
 • We don’t need to agree, everyone may have different experiences
Offer to write or draw
Themes and questions Can you tell about how it is to have needle injections?
 • About how it feels (if it hurts, what are you doing to decrease pain or worries?)
 • About how it takes place (who’s doing what)
Can you tell about the first time you got the injection at the hospital?
 • Do you remember if it was painful or if you worried?
 • Could anything have been done differently?
Can you tell about your disease and if the injection helps you?
What do children need to know when they start with needle injections?
What do you think about continuing with needle injections?
Is there anything else you want to tell?
Can you tell about your experiences with needle sticks?
 • About the frequency and length of the injection
 • About pain and worrying
  How it feels (pain and worries)
  If it hurts or you worry, what are your actions to decrease these?
Describe what’s going on in connection with the injection
 • What do you do before, during and afterwards
 • What do the adults do?
Tell about the education for needle injections
In what ways do the injections affect you in school, home and leisure activities?
What do you think about continuing with needle injections?
What do children need to know when they start with needle injections?
Is there anything else you want to tell?
Finish Summarize the main content in the conversation and ask if I have understood it correctly
Thank you very much for sharing your experiences!
(Give the child a little present)
Summarize the main content in the conversation and ask if we have understood it correctly
Thank you for sharing and discussing your experiences!
(Give them a little present)