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Table 1 Patient’s characteristics at first presentation to PR center

From: Factors impacting referral of JIA patients to a tertiary level pediatric rheumatology center in North India: a retrospective cohort study

 

All JIA

n = 520 (100)

ERA

n = 247 (47.5)

sJIA

n = 124 (23.8)

pJIA

n = 69 (13.3)

oJIA

n = 68 (13.1)

undJIA

n = 10 (1.9)

psoJIA

n = 2 (0.4)

Age at first PR visit

10.0 [5.5, 13.2]

12.4 [10.1, 14.7]

6.2 [3.9, 9.9]

8.3 [4.2, 11.8]

5.1 [2.6, 8.6]

7.2 [5.2, 16.0]

6.5 [1.3, 11.6]

Female sex (%)

235 (45.2)

62 (25.1)

59 (47.6)

52 (75.4)

53 (77.9)

7 (70)

2 (100)

Median time from symptoms onset to 1st assessment in PR (months)

 Whole cohort

4.1 [1.8, 15.6]

4.1 [1.5, 17.5]

3.8 [1.5, 11.0]

6.2 [2.8, 18.4]

4.6 [2.5, 14.9]

8.3 [2.2, 21.4]

1.2 [0.6, 1.7]

 Group A

3.3 [1.4, 10.2]

3.1 [1.2, 12.4]

2.4 [1.3, 6.4]

3.5 [1.9, 10.4]

3.9 [2.1, 9.5]

8.3 [2.2, 21.4]

1.2 [0.6, 1.7]

 Group B

13.8 [3.8, 34.5]

11.5 [3.4, 30.8]

13.1 [3.7, 50.0]

18.4 [7.5, 44.8]

19.0 [4.2, 33.8]

0

0

Median time from symptoms onset to diagnosis (months)

 Whole cohort

3.3 [1.5, 11.2]

3.1 [1.3, 13.7]

2.4 [1.2, 6.5]

4.1 [2.3, 12.3]

3.9 [2.0, 10.7]

8.3 [2.2, 21.4]

1.2 [0.6, 1.7]

 Group A

3.3 [1.4, 10.2 ]

3.1 [1.2, 12.5]

2.4 [1.3, 6.1]

3.5 [1.9, 10.4]

3.9 [2.1, 9.5]

8.3 [2.2, 21.4]

1.2 [0.6, 1.7]

 Group B

4.3 [1.5, 15.8]

3.1 [1.4, 17.5]

2.7 [1.0, 9.5]

7.1 [3.8, 17.0]

4.6 [1.2, 15.2]

0

0

Patients with time from symptoms onset to 1st PR visit <10 weeks (as per as BSPAR guidelines)

 Whole cohort

160 (30.8)

78 (31.6)

47 (37.9)

14 (20.3)

16 (23.5)

3 (30)

2 (100)

 Group A

145 (36.6)

71 (37.4)

41 (45.6)

13 (27.1)

15 (26.8)

3 (30)

2 (100)

 Group B

15 (12.1)

7 (12.3)

6 (17.6)

1 (4.8)

1 (8.3)

0 (0)

0 (0)

  1. Data are presented as frequencies (associated percentages) or as median [interquartile range]
  2. JIA juvenile idiopathic arthritis, oJIA oligoarticular JIA, pJIA polyarticular JIA, sJIA systemic JIA, ERA enthesitis related arthritis, psoJIA psoriatic JIA, UndJIA undifferentiated JIA, PR pediatric rheumatology, BSPAR british society for paediatric and adolescent rheumatology standards of care