Table 2 PROM / PREM data items highlighted for further discussion during the face-to-face interviews
Suggested Data Item | Discussion Points | Amendment Yes or No |
|---|---|---|
School | Some families queried the addition of a specific question on school. After careful consideration, it was decided that school-related concerns should be addressed within the existing data items. | No |
Mobility | One parent queried the need to include a specific PROM item on mobility. Other families considered this suggestion but did not agree. Mobility is assessed in detail in the CHAQ assessment. | No |
Dressing/ Undressing | One of the families highlighted the importance of dressing/undressing capability and queried whether an additional question may be required. After careful consideration it was decided that the physical well-being item within the questionnaire is sufficient to capture dressing/undressing. Dressing/undressing is explored in the CHAQ assessment. | No |
Free Text Boxes | The option to expand on answers was suggested as a useful revision for both questionnaires. PROM: the opportunity to note why the child was reporting a particular outcome was suggested. PREM: the opportunity to identify why the consultation was rated poorly was suggested as an important precursor to implementation of improvements. Further discussion within the research team clarified that the addition of free text format would not be in line with the initial aims of the PROM PREM development; rather clinicians should be encouraged to explore the reasoning behind responses within or following consultations as relevant. | No |