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Table 1 Baseline demographical, disease, and barriers characteristics of participants stratified by group

From: Feasibility and acceptability of an innovative adherence intervention for young adults with childhood-onset systemic Lupus Erythematosus

CharacteristicTotal Participants
(n = 19)
Control
(n = 11)
Treatment
(n = 8)
Demographics
 Age, mean, (SD) in yrs.20.5 (1.6)20.5 (1.6)20.5 (1.7)
 Gender (female), No (%)16 (84)11 (100)5 (63)
Race, No, (%)
 White6 (32)4 (36)2 (25)
 Black11 (58)6 (55)5 (63)
 Asian1 (5)1 (13)
 Multiple1 (5)1 (9)
Insurance type, No (%)
 Public7 (37)5 (45)2 (25)
 Private12 (63)6 (55)6 (75)
cSLE
 Disease duration, yrs., (SD)4.8 (3.2)4 (3)5.4 (3.4)
 SLEDAIa, mean, (range)5 (0–10)5 (2–10)4.4 (0–9)
 SLICCb, No., (%)4 (40)3 (30)1 (12.5)
 Physician global, mean (range)0.9 (0–3.5)1 (0–3.5)0.6 (0–1.5)
 Nephritis, No. (%)8 (42)5 (45)3 (38)
 PROMIS fatigue, mean (SD)53 ± 3.057 ± 2.947 ± 3.2
 PROMIS pain intensity, mean (SD)2.8 (2.3)3.6 ± 2.31.8 (1.9)
 No of Pillsc, mean (SD)7 (3.8)7 (3.5)8 (4.2)
 Presence of comorbidity (%)18 (95)11 (100)7 (88)
  Hypertension, No.  (%)5 (26)3 (27)2 (25)
  Depression, No. (%)5 (26)3 (27)2 (25)
  Obesity, No. (%)10 (53)7 (66)3 (38)
 Barriersd, No (%)
  Forgetting15 (79)11 (100)4 (50)
  Taste13 (68)9 (81)4 (50)
 Side effects
  Current12 (63)8 (73)4 (50)
  Future11 (58)6 (55)5 (63)
  Fertility concerns11 (58)7 (64)4 (50)
  Treatment upsetting8 (42)6 (55)2 (25)
  Inconvenient7 (37)6 (55)1 (13)
  Cost7 (37)5 (45)2 (25)
  1. aSLEDAI 2 K score from clinic visit preceding start of study
  2. bSLICC Damage Index obtained from annual calculated score within 12 months of study initiation
  3. cIncludes both lupus and non-lupus medications being taken by participants
  4. dIncludes barriers with fewer than 3 respondents such as difficulty swallowing pills, running out of medication, refusing to take treatment, believing treatment to be unnecessary, desire to keep treatment private from others, lack of perceived treatment benefit, treatment getting in the way, and hard instructions